Useful Links

Disclaimer: While we encourage you to surf the Internet for information to broaden your perspective on your child’s illness, please note that not all the medical information provided may be accurate or relevant in the local context. Such general information does not replace the close medical supervision and specific medical advice that your child’s attending doctor will have to offer.

GENERAL SITES
• American Academy of Pediatrics
• University of Maryland
• Brave kids – online resources for children with chronic and life-threatening illnesses
• Caring for Children with Special Needs
• KK Women’s and Children’s Hospital
• Health Xchange

BLOOD DISORDERS
• Thalassaemia International Federation
• Mumbai Thalassaemia Society
• Thalassaemia Society of Victoria (Australia)
• Children’s Thalassaemia Foundation Hong Kong *Chinese site*

LIVER DISORDERS
• Children’s Liver Disease Foundation
• Online Support Group for Liver Families

DISORDERS OF THE SPINE
• Spina Bifida Association of America
• Association for Spina Bifida and hydrocephalus
• John’s Spina Bifida page
• Spina Bifida and hydrocephalus association of Canada

HEART DISORDERS
• Congenital Heart Disease Information and Resources
• Kids with Heart
• Surgeries for Congenital Heart Disease
• PediHeart – an online support group and discussion forum

PREMATURE BABIES
• Premature child – support for the long term effects of prematurity
• A Resource for premie parents and health care professionals
• FAQ’s for parents of Preemies
• Preemie Resource Websites

OTHERS
• GRACE Give Rheumatoid Arthritis Children Encouragement
• SLE information from National Institute of Health
• Children with diabetes
• Juvenile Diabetes Research Foundation International
• Rainbow Services – for children with Cancer, Sickle Cell Disease, and Haemophilia
• International Federation for Spina Bifida & Hydrocephalus