Club Rainbow organizes regular talks, seminars and workshops in which medical practitioners and other professionals share their knowledge with parents thereby assisting them to manage their children’s medical problems and other problems at home. This could be about caring for their children with specific needs, new researches and treatments, stress management, handling finances or nutrition.
The charity has six major illness specific groups – the Blood Disorder (mainly Thalassaemia) group, Chronic Liver Disease (mainly Billiary Atresia) group, Very Low Birth Weight Infant (Preemies) or premature baby group, Congenital Heart Disease group, Spina Bifida group and Rare Genetic Network group.
Each year the charity organises special activities for each illness group to cater for their unique needs. An example of such an activity could be a talk about the risks associated with a liver transplant
We have a resource library located in the Rainbow Family Care Centre at the National University Hospital and at KK Women’s and Children’s Hospital. We also produce brochures, books and regular newsletters to share information and ideas.