#RainbowofHope A Heart Full of Colour: Eijaz’s Story of Strength and Joy
Eijaz is a lively, happy boy who loves singing, drawing, and colouring. Bright and expressive, he brings immeasurable joy to his family, and it is no surprise that his favourite shades are those of the rainbow—a fitting reflection of his spirited personality.
Eijaz’s journey began with tremendous fragility. Born at 25 weeks, he arrived as a micro preemie (born before the 26th week of pregnancy or weighs less than 700-800 grams) and faced a series of daunting medical challenges from the very start. He battled chronic lung disease and apnea of prematurity, endured an intestinal perforation that required a stoma operation, and was monitored closely for retinopathy of prematurity. At just ten months old, he went through an intense 28-day Extracorporeal Membrane Oxygenation (ECMO) journey, a period during which a machine supported his heart and lung function as he fought to survive. He later underwent bowel resection surgery, during which 15 centimetres of his intestine were removed, followed by a stoma closure operation.
In the years since, Eijaz has continued to navigate a complex medical landscape. He now lives with Autism Spectrum Disorder (ASD), Attention Deficit Hyperactivity Disorder (ADHD), a peanut allergy, and severe eczema. A traumatic hospital experience led to a deep food aversion, and due to ongoing feeding challenges, he currently relies on a nasogastric tube—carefully managed every day by his mother. Through it all, he has shown remarkable resilience, meeting each new hurdle with surprising strength for someone so young.
Ensuring that Eijaz receives the care he needs has brought many difficulties for the family. Managing his specialised diet, sourcing medical supplies, and coping with the financial weight of his medical needs have often felt overwhelming. The uncertainty surrounding his health and future has been a constant shadow. Yet amidst these challenges, having support—both practical and emotional—from organisations like Club Rainbow (Singapore) has been a huge blessing.
The family was first introduced to Club Rainbow in December 2018, when Eijaz was just a year old, through a social worker at KK Women’s and Children’s Hospital (KKH). It marked a meaningful turning point in their journey. Eijaz officially joined Club Rainbow at 17 months old, and since then, the organisation has been a steady presence and support. The family is especially grateful that his siblings are often included in Club Rainbow’s activities, allowing them to share in moments of joy and connection.
Over the years, Club Rainbow has offered not only assistance but also a sense of belonging. “Club Rainbow has been my rock, providing emotional support, guidance, and a sense of community. Their activities and workshops have helped me connect with other parents, learn new skills, and build confidence in caring for Eijaz. I'm grateful for their unwavering support.” shares Ms Zameera, caregiver of Eijaz.
Ms Zameera hopes that Eijaz will grow up happy, healthy, and surrounded by love, pursuing his passions with joy. “I dream of him overcoming his challenges and living a fulfilling life. For myself and his siblings, I hope we can continue to be strong, resilient and supportive of Eijaz. And that we can build a happy and secure future together.” She adds on that someday, when life feels a little steadier, she dreams of giving back—offering support to other families walking a similar path.
To the donors and supporters of Club Rainbow, she shares her heartfelt gratitude: “Thank you from the bottom of our hearts for changing our lives with your kindness and generosity. Your support gives me hope and strength to keep going, knowing that I’m not alone in this journey. Your compassion and understanding means the world to me, and I am forever grateful.”
Eijaz’s story is one of courage, colour, and a family’s unwavering love—a reminder that even in the most uncertain moments, hope continues to shine brightly.
Support low-income families like Eijaz’s family by donating to our #RainbowofHope fundraising campaign.
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore