International Day of Play (11 June 2026): Celebrating the Joy of Play with Kaitlyn
On International Day of Play (11 June 2026), Club Rainbow (Singapore) celebrates the simple yet powerful gift of play — and how it is helping children like Kaitlyn discover her voice, confidence and connection with the world around her.
At nine years old, Kaitlyn is a cheerful, curious and sociable girl who loves exploring. Whether she’s heading out on an adventure with her family or learning something new in school, she approaches life with bright-eyed wonder and an enthusiastic “HELLO!” for everyone she meets.
Kaitlyn lives with Autism Spectrum Disorder (ASD) and Global Developmental Delay (GDD), including severe speech delay and challenges with fine motor skills. She currently relies on her parents for daily activities and personal care. Before beginning play therapy, engaging with toys did not come naturally to her. Instead of exploring how they worked, Kaitlyn often bit them, unsure of how to interact in ways that felt meaningful or fun.
Through play therapy supported by Club Rainbow, small but significant shifts began to emerge. Kaitlyn started initiating play on her own, and the biting of non-food objects reduced. Most heartening of all was a moment her mother describes as unforgettable:
“Kaitlyn picked up a toy stethoscope and began pretend play with me. We had never seen her engage in imaginative play before. Watching her mimic a real-world interaction nearly brought me to tears.”
For her family, this wasn’t just play – it was connection, progress and hope.
Kaitlyn joined Club Rainbow in mid-2024 after a chance encounter at KH Plaza, where one of Club Rainbow’s office premise and her preschool were located. A simple question from an acquaintance — “Why aren’t you with Club Rainbow?” — opened the door to a community that would become a lifeline.
Since then, the Club Rainbow’s programmes have created opportunities the family once thought were out of reach. From overnight camps to family retreats, they have built precious memories together. With both parents navigating mid-career switches, the availability of free programmes has eased financial pressures during a season of rebuilding. Holiday activities and community-based programmes continue to give Kaitlyn regular exposure beyond home and school — an essential part of her social and developmental growth.
Kaitlyn’s parents hope she will one day gain greater independence and form deep, meaningful relationships within her community. And if you ever meet her, you will likely be greeted with a big “HELLO!” — an open invitation into her wonderfully curious world.
This International Day of Play, we are reminded that play is more than fun – it is also communication, imagination and belonging. And for children like Kaitlyn, it is a bridge to a brighter, more connected future.
Make a difference today - support Club Rainbow’s children like Kaitlyn
World Autism Awareness Day (2 April 2026): The Joyful World of Abhay
At 15, Abhay’s infectious smile and cheerful laughter have a way of brightening every room he enters. Described by his mother as handsome, charming, and endlessly joyful, Abhay is a constant source of happiness in her life. While some people express sympathy when they hear he is “special,” his mother sees things differently. To her, Abhay is a wonderful son and a precious gift who fills her days with laughter and love.
Abhay was diagnosed with Autism Spectrum Disorder (ASD) in 2014. From a young age, he showed signs such as hand flapping and fascination with spinning objects, alongside challenges with eye contact and speech. Like many families navigating an autism diagnosis, the journey came with its share of ups and downs. Yet through it all, Abhay’s bright and carefree spirit has remained unwavering, bringing light and positivity to those around him.
In 2016, during a follow-up appointment at Jurong Medical Centre’s Child Development Unit, a doctor recommended that the family connect with Club Rainbow (Singapore). Abhay officially began his journey with the organisation in 2017 — a decision that would open doors to new opportunities for growth, learning, and connection.
Over the years, Club Rainbow has supported Abhay and his family through a range of programmes, including Social Work Intervention, Therapy Intervention, Educational Support, Arts Development, and Vocational Development. His mother shares that the support has been invaluable, with their social worker, Gui Hao, regularly checking in each month. These touchpoints, alongside Club Rainbow’s activities and events, have helped create a strong support system for both Abhay and his family.
One of Abhay’s favourite highlights each year is the Dreamseeds Arts Fest, where Club Rainbow's children take centre stage to showcase their talents through singing, dancing, hosting, and playing instruments like the ukulele, guitar, and cajón. Abhay eagerly participates in these performances every year, embracing every opportunity to shine. He also looks forward to Camp Rainbow (a 3D2N stay-in camp for children with chronic illnesses organised by Club Rainbow), an experience he anticipates with excitement annually.
While Abhay once struggled with socialising and maintaining eye contact, his determination and encouragement from his mother have helped him overcome these challenges. Today, he is known as the “social butterfly” at school, easily making friends wherever he goes — a transformation that fills his mother with immense pride.
Among his many interests, Abhay’s greatest passion lies in singing and dancing. Performing allows him to express himself freely and share his pure, uninhibited joy with others. When he takes the stage, Abhay does more than perform — he spreads happiness.
Through platforms like Dreamseeds Arts Fest, Abhay has not only nurtured his love for performing but also contributed meaningfully to raising awareness about individuals with special needs. His mother hopes that one day he will be able to live independently and build a livelihood doing something he truly enjoys. Above all, she hopes he will always remain happy.
Abhay’s presence on stage is a celebration of courage, passion, and community spirit. His love for music and performance reminds us that contribution is not defined by cognitive ability, but by the willingness to share one’s gifts and bring joy to others. In doing so, Abhay continues to inspire everyone around him — proving that sometimes, the brightest lights shine from the purest hearts.
World Autism Awareness Day was declared to be held on 2 April of every year by The United Nations General Assembly. It highlights the need to help improve the quality of life of individuals with autism, so they can lead full and meaningful lives as an integral part of society. Autism is a lifelong neurological condition that manifests during early childhood, and the term Autism Spectrum refers to a range of characteristics. With appropriate support, accommodation and acceptance of this neurological variation, individuals on the Spectrum can enjoy equal opportunity, and full and effective participation in society.
Make a difference today - support Club Rainbow’s children like Abhay
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and registered charity with the mission to support and empower children with chronic illnesses, many of whom are with special needs and disabilities, and their families to lead a dignified life and become active contributors to society.
Website: https://www.clubrainbow.org/
Contact number: 6377 1789
Email: contact@clubrainbow.org
Instagram/ Facebook/ LinkedIn/ TikTok/ YouTube: @clubrainbowsingapore
Celebrating Mother’s Day (10 May 2026): Deeana’s Journey of Love and Strength
For Deeana, motherhood is a journey shaped by patience, resilience, and unconditional love. As the mother of three children with special needs, her days are filled with challenges — but also with moments of quiet strength and joy that remind her why every step forward matters.
Her daughter, Nuryn, lives with Global Developmental Delay, while her two sons are on the autism spectrum and have mild intellectual disabilities. Communication can sometimes be difficult, especially as her boys are not fully verbal. Yet over time, Deeana has learned that connection goes far beyond spoken words.
“Communication isn’t only about words,” she shares. “My children express themselves through their actions, their smiles, and their own unique ways of connecting with me.”
Through this journey, Deeana has come to appreciate the strengths within each of her children. She celebrates the milestones that others might overlook — small breakthroughs, shared laughter, or a quiet moment of understanding.
Support from Club Rainbow (Singapore) has also played a meaningful role for the family. Through its programmes and community, Deeana has found reassurance and encouragement along the way.
“The support they provide creates a positive and welcoming environment for children and families like ours,” she says. “It helps my children feel included, and it reminds me that we are not alone on this journey.”
Even during difficult times, Deeana finds motivation in her children themselves. Watching them persevere despite their challenges inspires her to keep going, reminding her that progress does not always come in big milestones, but in the courage to try again each day.
Amid her many responsibilities, self-care often comes in small, quiet moments — a short pause to breathe, reflect, and recharge before continuing to support her children with patience and strength.
For Deeana, Mother’s Day is not just a celebration but also a moment of reflection. It reminds her of the deep bond she shares with her children and the love that carries them through every challenge.
Some of her most treasured memories are the simplest ones: the moments when her children are happy and at peace. A smile, a laugh, or a small gesture of affection can mean everything.
“Sometimes love isn’t expressed through words,” she says. “It can be a look, a hug, or simply being close to each other.”
This Mother’s Day, Deeana also shares a message for other mothers and caregivers walking similar paths:
“To all mothers and mother figures, especially those raising children with special needs —your strength and love are powerful. Even on the hardest days, remember that your care, patience, and dedication truly matter. Every small step forward is something worth celebrating.”
Make a difference today - support Club Rainbow’s children and families like Deeana and her family
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and registered charity with the mission to support and empower children with chronic illnesses, many of whom are with special needs and disabilities, and their families to lead a dignified life and become active contributors to society.
Website: https://www.clubrainbow.org/
Contact number: 6377 1789
Email: contact@clubrainbow.org
Instagram/ Facebook/ LinkedIn/ TikTok/ YouTube: @clubrainbowsingapore
#RainbowofDreams: Finding His Rhythm: Rayson’s Journey in Music
Rayson has been part of Club Rainbow (Singapore) for ten years. Having joined in 2016, he has grown alongside a community that has supported him through different seasons of growth, challenge and discovery. Today, he continues to build confidence and shapes his aspirations, guided by his deep love for music.
Rayson lives with mild autism, which means he might experience sensations and perceive things differently from mainstream counterparts. While this presents certain challenges, it allows him to understand and interact with the world in his unique way. With steady support, Rayson explores life, at the joy that comes along, at his own pace.
Music is one of Rayson’s many passions. As he shares, “Many people say that individuals on the spectrum are artistic, I think music is what I am more inclined to. I really love music and am glad that I was given many opportunuities to pursue it.”
Music, for him, is more than just sound — it is expression and connection. It provides him with a space where he feels confident and understood.
Over the years, Club Rainbow has been a pillar of encouragement in both his personal and artistic journey. “The mentors and Club Rainbow staff here were extremely patient, understanding and friendly to me, and support me even when I feel upset.” Their patience and belief in him have given Rayson the reassurance to step forward, try new things, and believe in his own potential.
One of his most memorable milestones was participating in last year’s Dreamseeds Arts Fest Performing Arts Concert. Rayson not only performed as a band member but also took on the role of emcee — a significant achievement that pushed him beyond his comfort zone.
Reflecting on the experience, he shares, “Being in Dreamseeds was a whole lot of fun, I definitely enjoyed all the performances put up by Club Rainbow’s children who showcased their potential to everyone. Being an emcee helped me to grow in confidence, and also allowed me to step forward in a new role for future events.”
The opportunity, a defining moment in his journey of growth, allowed him to witness the collective strength of the Club Rainbow community.
As for the future, Rayson is still exploring his path, but would like to work becoming either a music composer or a deejay. To help him move closer to this dream, he hopes to continue his musical pursuits after secondary school. One possible pathway is Republic Polytechnic’s Diploma in Sonic Arts programme, and he is hopeful that the portfolio built with Club Rainbow will help him secure a placement through the Early Admissions Exercise.
For now, Rayson continues to take steady steps forward, guided by passion and perseverance. When asked what message he would share with aspiring young artists facing similar challenges, his encouragement is simple yet heartfelt:
“To all Club Rainbow's children, do whatever you can, and you'll achieve something!”
It is a reminder that progress does not need to be perfect or immediate. Sometimes, it simply begins with doing what you can — and believing that it will lead you somewhere meaningful.
Support young artists like Rayson by purchasing our Rainbow Artworks and Rainbow Merchandisespecially designed by our young artists, or by donating to our #RainbowofDreams Fundraising Campaign. Every donation helps nurture young talents and reminds our young artists that their art and stories matter.
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
#RainbowofDreams: A World of Imagination: Amberlynn’s Journey Through Art and Self-Expression
Amberlynn at Club Rainbow’s Arts Development Workshop
One of Amberlynn's artworks displayed at Club Rainbow’s Dreamseeds Visual Arts Exhibition
Amberlynn Wong is on the cusp of her teenage years, a bright and imaginative young artist who finds joy in both art and games. From a young age, creativity has been a natural part of her world — a space where she can express herself freely and confidently.
Living with autism, Amberlynn experiences the world a little differently. She shares, “Autism makes it harder for me to understand social cues. I often take things that people say quite literally, and I also don't really understand if people want to talk to me.” While social interactions can sometimes feel confusing, art has become a language of its own — one that allows her to communicate, connect, and make sense of her surroundings.
Her journey with art began at just three years old. What started as a simple moment of watching her classmates draw while waiting to be picked up from school, quickly turned into something much more meaningful. Inspired, she picked up a piece of paper and began drawing too. Since then, her passion has only grown. Today, Amberlynn specialises in character art and design, bringing her ideas to life through expressive and imaginative creations.
Much of her inspiration comes from the vibrant world of anime, as well as the many fan artists whose work she admires. These influences have helped shape her style while encouraging her to explore her own creative voice.
Amberlynn has been part of Club Rainbow (Singapore) since 2017, when her parents first enrolled her in sessions. As she grew older, she began to appreciate the support and opportunities Club Rainbow provided. Through Club Rainbow’s art sessions, she was able to expand her skills beyond drawing, experimenting with different art styles and mediums such as painting, and discovering new ways to express her creativity.
Looking ahead, Amberlynn hopes her art can bring joy and encouragement to others. She shares, “I hope to make people happy with my art and remember that even a slightly nice-looking or witty art piece would help them to keep going.” It is a simple yet powerful aspiration — to uplift others through creativity, one artwork at a time.
To families of children who are aspiring artists and facing similar challenges, Amberlynn offers heartfelt advice: “Don't give up. You can use others’ art as inspiration and a starting point but never copy. Even if the whole world says your art is horrible, it's your own art, and no one can take it from you.”
Her words reflect both resilience and authenticity — a reminder that every creative journey is unique, and that art, in all its forms, is something deeply personal and worth holding onto.
Support young artists like Amberlynn by purchasing our Rainbow Artworks and Rainbow Merchandisespecially designed by our young artists, or by donating to our #RainbowofDreams Fundraising Campaign. Every donation helps nurture young talents and reminds our young artists that their art and stories matter.
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
#RainbowofDreams A Quiet Bloom: Elijah’s Story of Growth, Colour and Confidence
At 18 years old, Elijah is a cheeky boy with a wide range of interests. He enjoys baking, gardening, exercising, and — perhaps most of all — making friends wherever he goes. There is a gentle determination about him, paired with a bright smile that reflects his warm spirit.
Elijah was diagnosed with Autism Spectrum Disorder (ASD) and apraxia at a young age. Like many families navigating a developmental diagnosis, his journey has been one of patience, resilience and steady encouragement. Elijah’s story is not defined by limitation — it is defined by growth.
It was during the COVID-19 period, when much of the world slowed down, that Elijah’s artistic journey began to take shape. Seeking meaningful ways to keep him engaged at home while strengthening his fine motor skills, his family introduced him to drawing. What began as a simple activity soon blossomed into something much more.
Elijah gravitated naturally towards drawing flowers and adorable cartoon characters. Through art, he found not just an activity, but a sense of achievement. The praise he received and the satisfaction of completing a piece he once thought beyond his ability ignited something within him. Each finished drawing became a small but powerful victory.
His inspiration comes from everyday life — the simple beauty of what he sees around him. He enjoys experimenting with different tones and colours, using them to express how he perceives the world. There is joy in his palette, and sincerity in every line he creates.
The family first learnt about Club Rainbow (Singapore) through a neighbour who also has a child with special needs. Encouraged to seek support, they approached KK Women’s and Children’s Hospital (KKH), who referred Elijah to Club Rainbow. He joined at around eight years old — a step that would become a significant part of his journey.
Over the years, Club Rainbow has opened many doors for Elijah. From therapy sessions to drawing classes, computer programming and baking activities, he has been given opportunities that are not always easily accessible to children with special needs. These experiences have nurtured not only his skills but also boosted his confidence.
A special mention goes to his art instructor, Ms Shirley, who has consistently encouraged him and made art lessons something he genuinely looks forward to. Under her guidance, drawing became more than just practice — it became a space where Elijah could thrive. The lessons have strengthened his self-belief and supported the development of his social skills, allowing him to connect more comfortably with others.
For Elijah’s family, their hopes are beautifully simple: that he continues to be happy and keeps striving to grow into the best version of himself.
To families walking a similar path, especially those raising aspiring young artists with health challenges, they share this heartfelt message: Do not lose hope. The journey may be difficult, but it is never impossible.
Elijah’s story reminds us that growth can be quiet, confidence can bloom gently, and sometimes the most beautiful colours emerge from perseverance and love.
Support young artists like Elijah by purchasing our Rainbow Artworks and Rainbow Merchandisespecially designed by our young artists, or by donating to our #RainbowofDreams Fundraising Campaign. Every donation helps nurture young talents and reminds our young artists that their art and stories matter.
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
World Down Syndrome Day (21 March 2026): Kendre's Journey of Hope and Heart
At 12 years old, Kendre is a cheerful and affectionate boy who lights up most when he is outdoors. Being a foodie, he especially enjoys moments spent exploring new places and flavours. Born with Down Syndrome and a congenital heart condition, Kendre’s journey has been marked by both resilience and quiet strength.
When Kendre was just 18 months old, he lost his father to cancer. As an only child, he shares an especially close bond with his mother, who has been his constant pillar of love and support through every milestone and challenge.
Kendre joined Club Rainbow (Singapore) in 2017 after being referred by KK Women's and Children's Hospital (KKH). In his early years, when he was unable to walk independently, the family benefited from Club Rainbow’s home-based therapy services. As he grew older, weekly speech therapy sessions supported his communication development. Today, school holiday outings organised by Club Rainbow give Kendre opportunities to explore the community in ways that are meaningful and affordable for his family.
Over the years, Kendre has overcome significant challenges. He no longer requires a nasogastric (NG) tube, has become more vocal, and in recent years has begun learning to read, count and write — milestones that reflect his determination and steady progress.
While he may not have a fixed passion just yet, Kendre enjoys being guided in cooking and baking, delighting in the hands-on experience (and perhaps the tasty results). His dream is a simple but heartfelt one: to go on holidays and see more of the world.
Looking ahead, his mother hopes that Kendre will grow in independence, manage daily tasks confidently, and one day hold a part-time job — spending his adulthood meaningfully and with purpose.
And in his own words, Kendre has a message for everyone this World Down Syndrome Day:
“There is hope in everything!”
World Down Syndrome Day is a global awareness day to help people understand and support those with Down Syndrome better. The date being the 21st day of the 3rd month was chosen to represent the triplication (trisomy) of the 21st chromosome which causes Down Syndrome. Around 1 in every 800 babies will be born with Down Syndrome. People with Down Syndrome usually have an intellectual disability, and some health conditions are also more common in them.
Make a difference today - support Club Rainbow’s children like Kendre
Rare Disease Day (28 February 2026): Joanne’s Story of Finding Light After Years of Uncertainty
Joanne is a bright, lively child whose presence brings warmth and joy to her home. Born in December 2019, she is the youngest of three siblings and is deeply cherished by her parents and sisters. Her early years began much like any other child’s, but when Joanne turned two, her family’s journey took an unexpected and challenging turn—one marked by uncertainty, resilience, and an unwavering determination to keep going.
Joanne lives with hyperinsulinemic hypoglycemia (HH), a rare and life-threatening condition that causes her body to produce excessive insulin even when her blood sugar levels are already dangerously low. For a young child, this can be especially devastating. The brain relies heavily on glucose for energy, and repeated episodes of low blood sugar can lead to seizures, developmental injury, and in severe cases, coma or death.
What makes Joanne’s journey particularly challenging is that her condition went undiagnosed for several years. In 2021, at just two years old, Joanne experienced her first seizure. As the seizures became more frequent and intense, she was treated for epilepsy, undergoing numerous tests and genetic investigations. Despite these efforts, the underlying cause remained hidden. Different anti-epileptic medications were introduced in hopes of controlling her seizures, but the episodes continued.
Over time, the repeated seizures took a heavy toll. Joanne gradually lost milestones she had once achieved—she stopped walking, stopped talking, and grew increasingly weak. She was later diagnosed with Global Developmental Delay, and by the end of 2023, she was largely bedridden and minimally responsive. For her parents, watching their once-active child fade was an indescribably painful experience.
Joanne with her family
Then, in September 2023, an unexpected discovery changed everything. During a hospital admission for extended monitoring, a test revealed that Joanne’s blood glucose levels were critically low. She was immediately placed on intravenous glucose, and for the first time in years, the seizures stopped completely. Nights once filled with fear became calm and quiet.
Today, Joanne has been weaned off all anti-epileptic medication. While the exact cause of her HH remains unknown, her condition is now carefully managed through medication and diet. The damage from those undiagnosed years cannot be fully reversed, but the seizures no longer define her life.
Progress now comes in small but powerful moments—smiles, laughter, and renewed connection. Joanne has begun regaining abilities her family once feared were lost forever. She can walk with support, feed herself with a spoon, imitate words and actions, and express her emotions freely. These milestones, so ordinary to many, are extraordinary victories for Joanne and her family.
In 2024, Joanne joined Club Rainbow (Singapore) after being introduced by her pediatrician. Since then, the organisation’s programmes have supported her development in meaningful ways. Through the Joyful Learning Programme, Joanne was able to explore reading and learning in a nurturing environment despite being unable to attend preschool. She also benefited from subsidised home-based physiotherapy, which supported her rehabilitation journey, as well as home-based art therapy, where she could explore creativity and self-expression.
Today, Joanne enjoys playing with jigsaw puzzles, swimming, visiting playgrounds, and is even beginning to explore singing. Her dreams are simple yet profound—to walk, run, jump, and dance again, and to continue discovering the world around her with growing independence and confidence.
By sharing Joanne’s journey this Rare Disease Day, her family hopes to raise greater awareness about rare conditions like hyperinsulinemic hypoglycemia, and the life-changing impact of early diagnosis and timely intervention.
Joanne’s story is a reminder that while rare diseases may be invisible to many, the children living with them are full of strength, courage, and hope. And sometimes, progress is not measured in leaps—but in the quiet, precious moments that remind us how far a child has come.
Rare Disease Day is observed every year on 28 February (or 29 February in leap years—the rarest day of the year). It was established and is coordinated by EURORDIS in partnership with over 70 national alliance patient organisations. The day serves as a powerful focal point, driving advocacy efforts at local, national, and international levels. Rare Disease Day is a globally coordinated movement dedicated to rare diseases, striving for equity in social opportunities, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its creation in 2008, Rare Disease Day has played a crucial role in building an international rare disease community—multi-disease, global, and diverse, yet united in purpose.
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and registered charity with the mission to support and empower children with chronic illnesses, many of whom are with special needs and disabilities, and their families to lead a dignified life and become active contributors to society.
Website: https://www.clubrainbow.org/
Contact number: 6377 1789
Email: contact@clubrainbow.org
Instagram/ Facebook/ LinkedIn/ TikTok/ YouTube: @clubrainbowsingapore
#RainbowofHope A Heart Full of Colour: Eijaz’s Story of Strength and Joy
Eijaz is a lively, happy boy who loves singing, drawing, and colouring. Bright and expressive, he brings immeasurable joy to his family, and it is no surprise that his favourite shades are those of the rainbow—a fitting reflection of his spirited personality.
Eijaz’s journey began with tremendous fragility. Born at 25 weeks, he arrived as a micro preemie (born before the 26th week of pregnancy or weighs less than 700-800 grams) and faced a series of daunting medical challenges from the very start. He battled chronic lung disease and apnea of prematurity, endured an intestinal perforation that required a stoma operation, and was monitored closely for retinopathy of prematurity. At just ten months old, he went through an intense 28-day Extracorporeal Membrane Oxygenation (ECMO) journey, a period during which a machine supported his heart and lung function as he fought to survive. He later underwent bowel resection surgery, during which 15 centimetres of his intestine were removed, followed by a stoma closure operation.
In the years since, Eijaz has continued to navigate a complex medical landscape. He now lives with Autism Spectrum Disorder (ASD), Attention Deficit Hyperactivity Disorder (ADHD), a peanut allergy, and severe eczema. A traumatic hospital experience led to a deep food aversion, and due to ongoing feeding challenges, he currently relies on a nasogastric tube—carefully managed every day by his mother. Through it all, he has shown remarkable resilience, meeting each new hurdle with surprising strength for someone so young.
Ensuring that Eijaz receives the care he needs has brought many difficulties for the family. Managing his specialised diet, sourcing medical supplies, and coping with the financial weight of his medical needs have often felt overwhelming. The uncertainty surrounding his health and future has been a constant shadow. Yet amidst these challenges, having support—both practical and emotional—from organisations like Club Rainbow (Singapore) has been a huge blessing.
The family was first introduced to Club Rainbow in December 2018, when Eijaz was just a year old, through a social worker at KK Women’s and Children’s Hospital (KKH). It marked a meaningful turning point in their journey. Eijaz officially joined Club Rainbow at 17 months old, and since then, the organisation has been a steady presence and support. The family is especially grateful that his siblings are often included in Club Rainbow’s activities, allowing them to share in moments of joy and connection.
Over the years, Club Rainbow has offered not only assistance but also a sense of belonging. “Club Rainbow has been my rock, providing emotional support, guidance, and a sense of community. Their activities and workshops have helped me connect with other parents, learn new skills, and build confidence in caring for Eijaz. I'm grateful for their unwavering support.” shares Ms Zameera, caregiver of Eijaz.
Ms Zameera hopes that Eijaz will grow up happy, healthy, and surrounded by love, pursuing his passions with joy. “I dream of him overcoming his challenges and living a fulfilling life. For myself and his siblings, I hope we can continue to be strong, resilient and supportive of Eijaz. And that we can build a happy and secure future together.” She adds on that someday, when life feels a little steadier, she dreams of giving back—offering support to other families walking a similar path.
To the donors and supporters of Club Rainbow, she shares her heartfelt gratitude: “Thank you from the bottom of our hearts for changing our lives with your kindness and generosity. Your support gives me hope and strength to keep going, knowing that I’m not alone in this journey. Your compassion and understanding means the world to me, and I am forever grateful.”
Eijaz’s story is one of courage, colour, and a family’s unwavering love—a reminder that even in the most uncertain moments, hope continues to shine brightly.
Support low-income families like Eijaz’s family by donating to our #RainbowofHope fundraising campaign.
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
#RainbowofHope A Little Fighter with a Big Heart: Haygen’s Journey
When Haygen arrived in the world at just 25 weeks, weighing barely 900 grams, the doctors called him a miracle. Babies born under 1 kilogram often face an uphill battle for survival, yet from his very first breath, Haygen showed the world the quiet strength of a true fighter. Today, he is a tall, bright boy—chatty, spirited, and full of curiosity about everything around him. He adores fire engines and construction sites, perhaps inspired by his grandfather, who works in construction. He also loves cooking, always eager to learn, explore, and try something new.
In his early years, Haygen was diagnosed with Global Developmental Delay (GDD). He faces difficulties recognising alphabets, numbers, shapes, and colours, and has faced delays in speech as well as physiological issues affecting his legs. Over time, with consistent support and regular intervention, such as Fei Yue’s Early Intervention Programme, Haygen has been gradually catching up. This year marks a special milestone—his graduation from the programme—an achievement that fills his family with pride and gratitude.
Caring for Haygen brings a beautiful mix of joys and challenges. At home, Haygen’s boundless energy keeps everyone on their toes. He is lively, cheeky, and wonderfully active, and guiding him each day requires patience, resilience, and love - but Haygen’s family have never stopped doing their very best for him.
The family first learnt about Club Rainbow (Singapore) through Haygen’s doctor at KK Women’s and Children’s Hospital (KKH), Dr Khoo. In 2020, Haygen officially joined the Club Rainbow family, and the support since then has made a meaningful difference. Assistance with essentials such as diapers and milk powder has eased the family’s financial burdens, allowing them to focus more fully on Haygen’s growth and wellbeing.
Ms Charlotte, caregiver of Haygen, shares, “We all hope that Haygen will grow up healthy happy making the right choices and decisions for himself”. They believe deeply in his potential, and every small step he takes is a celebration of how far he has already come.
To the donors and supporters of Club Rainbow, Ms Charlotte wishes to extend their heartfelt thanks and gratitude. “Thank you so much for all the support over the years—it has truly been a pleasure!”
Haygen’s story is a reminder that miracles come in many forms—and sometimes, they come in the shape of a little boy with a big smile, a brave spirit, and a heart full of wonder.
Support low-income families like Haygen’s family by donating to our #RainbowofHope fundraising campaign.
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
#RainbowofHope A Family Bound by Hope: Gabriel and Gessica’s Path Forward
Gabriel and Gessica are two remarkable children whose lives have been shaped by resilience, courage and the unwavering love of their family.
Gabriel entered the world far earlier than expected, born prematurely at just 28 weeks. From the very beginning, his journey was marked by medical challenges. He was diagnosed with chronic lung disease and a hernia at birth. By the age of one, Gabriel was identified as having global developmental delay, and at three, he was diagnosed with autism. More recently, at the age of ten, he was also diagnosed with exam-related anxiety.
For Gabriel, hospital wards became a familiar environment. The National University Hospital (NUH) felt almost like a second home during his early years. Thankfully, as he has grown older, his physical health has improved. However, periods of stress—particularly during exams—can still take a heavy toll on his body, reminding his family that his journey requires ongoing care and understanding.
Gessica’s path has been different, yet equally challenging. She was diagnosed with high-functioning mild autism at the age of three, and later, at six, with dyslexia. In her younger years, she struggled with emotional regulation. When she heard the word “no”, she would lie down on the floor or even on the road, overwhelmed by distress. She was also fearful of adults, which made social interactions particularly difficult.
Behind the scenes, their parents have faced many practical challenges. Gabriel’s frequent hospital appointments—sometimes several in a single month—required careful juggling of work and caregiving responsibilities. Ms Jasmine, caregiver of Gabriel and Gessica, shares, “As we are working parents, we had to take turns taking leave from work. When Gabriel was hospitalised, one of us stayed with him while the other cared for Gessica at home, and during those times, neither of us was able to work.”
From the very beginning, Club Rainbow (Singapore) became a pillar of support for the family. It was through a social worker at NUH that the family first learnt about Club Rainbow. Gabriel joined Club Rainbow when he was just one year old, in 2011. Gessica followed some years later, joining at the age of four in 2017.
Ms Jasmine recalls, “I remember when Gabriel was born. His father’s income was very low, and we struggled even to pay for his medical bills. Club Rainbow supported our family in so many ways, providing food, milk powder and diapers when we needed them most.”
As the children grew, new challenges emerged. Therapy was essential, but the cost was beyond what the family could manage. Once again, Club Rainbow provided subsidised therapy sessions that made these services accessible. “They truly helped to ease our financial burden. Without all the support from Club Rainbow over the years, my children would not have come this far. Today, they are even able to attend tuition lessons,” Ms Jasmine adds.
Today, the family’s hopes are simple yet profound: that Gabriel and Gessica will grow to live independently, stay healthy, and find happiness in their lives.
To the donors and supporters of Club Rainbow, the family shares a heartfelt message of gratitude, “Even the smallest gesture through your donations has made a meaningful difference to our family’s life.”
“To Club Rainbow (Singapore), thank you for supporting us throughout our journey. Without your dedication and hard work, we would not have come this far. I am truly appreciative and deeply grateful for all the support you have given to my family.”
Support low-income families like Gabriel and Gessica’s family by donating to our #RainbowofHope fundraising campaign.
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
A Family Bound by Love — The Ngeiw Family’s Journey of Strength, Care and Hope
The Ngeiw Family
For the Ngeiw family, every day is a story of love, resilience, and togetherness. Parents to three wonderful boys — Chen Kang, Chen Rui, and Chen An — they have embraced life’s challenges with open hearts and unwavering faith, drawing strength from one another.
The eldest, Chen Kang, is a caring and responsible young boy who loves reading and drawing. He shares a special bond with his brothers, especially Chen Rui. Whether he’s helping to prepare medication, setting up the bath chair, or reading bedtime stories to both Chen Rui and Chen An, Chen Kang’s nurturing, protective nature shines through. When Chen Rui came home after a long stay in Singapore General Hospital (SGH)’s Intensive Care Unit (ICU), Chen Kang instinctively understood that his brother needed extra care — and he has been his gentle protector ever since.
Chen Rui, the middle child, lives with severe cerebral palsy and spastic quadriplegia due to a lack of oxygen at birth. Despite his medical challenges, he fills the home with joy. He is currently schooling at Cerebral Palsy Alliance Singapore (CPAS), where he enjoys the company of his teachers and friends, and his face lights up whenever he hears his favourite songs or stories. He loves outings to Changi Airport, museums, or East Coast Park. Chen Rui communicates through gestures, facial expressions, and assistive communication tools such as the Big Mack and Head Switch, allowing his vibrant personality to shine through in his own unique way.
The youngest, Chen An, is both artistic and athletic. He loves drawing and origami, and has a passion for cycling and swimming. Much like Chen Kang, he showers Chen Rui with love and care — helping to push his wheelchair during family outings and playing ball with him during therapy sessions.
Navigating Life with Courage
Each of the Ngeiw siblings faces their own set of health challenges.
Chen Kang was diagnosed with hypothyroidism at two months old and underwent surgery to address kidney scarring caused by urine reflux. Chen Rui, due to his condition, depends entirely on his caregivers for daily needs and requires Percutaneous Endoscopic Gastrostomy (PEG) tube feeding for nutrition, as well as frequent Clean Intermittent Catheterization (CIC) to prevent bladder stones. Meanwhile, Chen An manages childhood asthma after being born prematurely.
Despite the complexities of their routines, the Ngeiw family have found strength in unity. Yet, the holiday season often presents a significant challenge: finding suitable places to bring Chen Rui. “Many venues lack the necessary accommodations for individuals with special needs, such as a full-size changing bed for a growing teenager's diaper changes or amenities for PEG tube feeding,” Ms Quek, mother of the Ngeiw siblings, shares. This challenge is amplified when considering overseas road trips, like to Malaysia. “Long drives are difficult for Chen Rui as he cannot endure extended periods in his wheelchair, requiring much more frequent nature breaks, CIC, and tube feeding stops.”
Finding a Community in Club Rainbow (Singapore)
Their journey with Club Rainbow (Singapore) began years ago, through Ms Sally from Club Rainbow at KK Women’s and Children’s Hospital (KKH). Since then, Club Rainbow has become a cherished support system for the family.
Every year under Club Rainbow’s Kris Kringle programme, families are invited to submit a small wish that their child would love to receive for Christmas under Kris Kringle. Through Kris Kringle, the Ngeiw siblings have received thoughtful gifts — musical night lights, Nerf guns, and headphones — each bringing smiles and festive cheer to their faces. They have also enjoyed taking part in heartwarming holiday events and workshops, such as the Christmas party at KKH, a robotics workshop, a Black Soldier Fly workshop. In 2024, the Ngeiw family also took part in Club Rainbow Family Retreat, a memorable cruise to Penang.
“These experiences were a perfect chance to bond and spend quality time together,” Ms Quek reflects. “We got to reflect on ourselves and deepen our relationships. We truly treasure these valuable memories!”
The Gift of Support and Community
Over the years, Club Rainbow has been an invaluable partner to the Ngeiw family. The transport service to and from KKH, for example, has been a lifesaver for Chen Rui, allowing the family to attend hospital appointments punctually and return home in time for his critical routine of CIC, shower and tube feeding.
The education awards offered by Club Rainbow also serve as powerful motivation for Chen Kang and Chen An, encouraging them to work hard and do their best in their learning, giving them recognition for their efforts. And every Christmas, the Kris Kringle programme — complete with handwritten notes from anonymous donors — bring warmth and love into their home.
“We are truly grateful for this kindness,” Ms Quek says. “It adds a lovely touch of festive joy to our family.”
A Message of Gratitude and Hope
To the donors and partners who make Kris Kringle possible, the Ngeiw family has a heartfelt message:
“Our deepest gratitude goes out to the donors and partners who brought the magic of Kris Kringle to life. We are immensely appreciative of the time and kindness you have shown to every child at Club Rainbow. In today's busy society, it is profoundly heartwarming to see donors who not only remember and care for children with special needs but who also take the time to ensure their gifts are sent from the heart, filled with love and empathy. Thank you very much for your selfless sacrifice. Your dedication lights up our festive season and the joy you gifted has truly touched all of us.”
And to those who may be considering donating or fundraising for Kris Kringle this year, they share a message of encouragement:
“The reach of your gift of love and kindness is immeasurable. Your generosity creates a ripple effect, ensuring that kindness will beget kindness as one good deed naturally sparks others. This mutual support and compassion are what will strengthen our community and nation for generations to come.”
The Ngeiw family’s story is one of courage, connection, and hope — a reminder that with love and support, even the most challenging journeys can be filled with light.
Support our children like the Ngeiw siblings via #DiamondsofResilience Fundraising Campaign. Every donation also brings a double blessing: Thanks to Tote Board’s dollar-for-dollar matching, your contribution will go twice as far in brightening the lives of our children this holiday season.
Share the gift of hope and make this season brighter for our children - donate today, start your own fundraising campaign or spread the word with #SpreadRainbowCheer #DiamondsofResilience!
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
International Volunteer Day (5 December 2025): Through Wei Song’s Lens - Capturing Hope, One Frame at a Time
This International Volunteer Day, we shine the spotlight on one of our dedicated volunteers whose quiet artistry has touched countless hearts. Through his lens, Wei Song has helped capture the laughter, love, and courage that define our children and families at Club Rainbow (Singapore). His story reminds us that every act of giving — no matter how small — can create ripples of hope and connection.
By day, Wei Song works as an AI software engineer — thoughtful, methodical, and immersed in technology. But when he picks up his camera, a different world opens up. Through the lens, he sees more than faces and frames — he sees resilience, connection, and the quiet strength that fills every Club Rainbow event he supports.
Wei Song recalls the moment he first started photography. “I first took a photo when I was five,” he recalls. “It was of my infant sister sleeping.”
It wasn’t until 2014 that Wei Song bought his first camera and began exploring photography in earnest. A chance encounter on ClubSnap, previously used to be a photography forum, set him on an unexpected path. “It was very coincidental as I was looking for opportunities to volunteer, and there was a call for volunteers” he shared.
Preparation for each volunteering event starts the day before – “My camera has to be charged, memory card prepared, and reading through the event details provided,” Wei Song says. “On the day itself, I grab a coffee on the way to the venue or when I manage to catch a break during the event. I would also check in with the organisers to look out for and start capturing the key moments. After the event, it’s back home for post-processing before sending the photos to the organisers.”
For Wei Song, photography is more than just documentation — it’s storytelling. “Photographs capture a precious moment in time,” he says. “Based on that moment in time, there could be a story or cause that people can understand and resonate with, without language barriers.”
Among the many images he has taken, specific moments resonate with him most. “Moments where the children can be themselves because they know the befrienders and organisers have their backs!” shares Wei Song.
Photo taken by Wei Song at Celebrating Heroes 2024
Photo taken by Wei Song at Camp Rainbow 2024
Of course, photographing at events with children comes with its own set of challenges. “I try to avoid using flash as some of the children are light-sensitive,” Wei Song explains. “Thus, it can be challenging to find the right amount of light for photos, so I often plead with the organisers to switch on more lights, if possible,” he adds.
Over time, the people and moments he has captured have profoundly inspired and shaped the way he sees the world – The children’s strong will, grit and mindsets that keep them going. The parents’ unconditional love for their children. Camp Rainbow volunteers (Camp Rainbow is Club Rainbow’s annual biggest and only medically-supervised 3D2N camp for children with chronic illnesses, aged between 6 to 16 years old. Camp Rainbow is entirely volunteer-driven) and Club Rainbow staff’s unbridled passion that powers them.
What keeps him going is the joy of seeing growth, both in the children he photographs and in himself. “It’s about capturing the unadulterated expressions of kids enjoying the well thought out events and watching some of them grow and become more matured!”
As the world celebrates International Volunteer Day, Wei Song hopes others will discover the same quiet fulfilment that volunteering has brought him:
“Volunteering has opened my eyes to scenes of vulnerability and resilience I never would have encountered otherwise. witnessing, and sometimes capturing these moments has helped me to grow, to reflect, and to see life’s small, ordinary gifts with new clarity. I often feel I receive more than I give; volunteering has made me appreciate life in ways I never expected. So, dive right in if you feel like trying, you’ll leave richer than you imagine!”
At Club Rainbow, our volunteers are the heart of what we do — bringing their time, talents, and compassion to uplift the lives of our children with chronic illnesses and their families. This International Volunteer Day, we celebrate individuals like Wei Song, whose dedication reminds us that even the smallest acts of kindness can make a world of difference.
Thank you to all our volunteers for colouring our rainbow with your light!
International Day of Persons with Disabilities (PWDs) (3 December 2025): Wilbur’s Journey of Courage, Positivity and Strength
Wilbur (first from right) with his siblings
Wilbur with his family
Born on 1 January 2012, Wilbur came into the world as a joyful New Year’s baby. His early years were filled with laughter and milestones, but his parents noticed that he was slower to walk and often lost his balance. Though doctors initially advised that it was too early to tell if anything was wrong, further observations eventually led to a referral to the National University Hospital (NUH) for genetic testing. In 2017, Wilbur was diagnosed with Duchenne muscular dystrophy, a progressive condition that causes muscle weakness over time.
Despite the challenges that came his way, Wilbur continues to show courage and resilience in every part of his journey.
Wilbur, who has one older sister and two younger brothers, began his schooling at Keming Primary School in 2019. When he started using a wheelchair, the school went above and beyond to ensure accessibility, even modifying the campus with ramps and raised pathways so Wilbur could move around with greater ease. “The school was very supportive,” shares his mother with gratitude. By the end of 2021, Wilbur had transitioned to a motorised wheelchair, gaining more independence.
Wilbur at a Boccia Competition
Now a student at Hillgrove Secondary School, Wilbur continues to thrive. His school has also been proactive in supporting his needs, and in August 2025, he proudly represented Hillgrove in Play Inclusive — Singapore’s largest inclusive sports event. There, he discovered boccia, a precision ball sport designed for athletes with physical disabilities, which has since become his co-curricular activity (CCA). Just a few months later, in November 2025, Wilbur won a silver medal in his first official competition representing the Muscular Dystrophy Association (Singapore).
Wilbur joined Club Rainbow (Singapore) in 2022, after being introduced through a social worker from KK Women’s and Children’s Hospital (KKH). Since then, Club Rainbow has supported his family with transport services to medical appointments — a crucial lifeline that lightens their daily load — and celebrates his special day each year with a birthday cake voucher, bringing a smile to his face.
When he’s not in school or training, Wilbur enjoys playing mobile games, a hobby that keeps him entertained and connected with friends. While he’s still exploring what the future holds, his parents’ hope is simple yet heartfelt — that he will one day be able to “find a simple job and earn a living for himself.”
Wilbur’s positive outlook continues to inspire those around him. His message to others is one that beautifully captures his spirit:
“Be positive and see things in a happier way.”
This International Day of Persons with Disabilities, we celebrate Wilbur’s courage, optimism, and the unwavering support of his family — a reminder that with inclusion, understanding, and hope, every child can thrive and chase their dreams.
International Day of Persons with Disabilities (PWDs) is observed every year on 3 December – This United Nations-recognised day aims to promote understanding and acceptance of people with disabilities, raise awareness of disability issues, and mobilise support for the inclusion of persons with disabilities in all aspects of life.
Make a difference today - support Club Rainbow’s children like Wilbur
World Prematurity Day (17 November 2025): Rachelle’s Journey of Joy and Determination
Born as one of a set of triplets, Rachelle came into the world ahead of time — a tiny fighter with a big spirit. Now 18 years old, she studies at Cerebral Palsy Alliance Singapore School, where her cheerful nature and determination continue to shine through each day.
Rachelle was diagnosed with severe Dystonic Cerebral Palsy and quadriplegia when she was about one year old. Despite having zero mobility, she has not let her condition define her. Cognitively strong and expressive, Rachelle communicates clearly and radiates positivity to those around her.
Using an assistive “sip and puff” switch, Rachelle independently manoeuvres her motorised wheelchair and navigates her iPad. Through this same adaptive technology, she channels her creativity into digital design using platforms like Canva and Linearity Curve — skills that have opened up new worlds of independence and self-expression.
Rachelle and her family were first introduced to Club Rainbow (Singapore) in 2021 through her rehabilitation team at KK Women’s and Children’s Hospital. Since then, Club Rainbow has supported her through subsidised home physiotherapy sessions and opportunities to join social programmes and events. One of her most memorable experiences was the Club Rainbow Family Retreat cruise, where she and her family shared meaningful time together.
Despite the challenges she faces, Rachelle’s joyful outlook has made her a beloved student among teachers and therapists alike. When she’s not designing or exploring new digital tools, she enjoys watching TV, going out to eat, and travelling with her family. Her biggest dreams? To visit Disneyland in Japan and explore Labubu Land in Shanghai — adventures that reflect her bright, imaginative spirit.
Rachelle’s parents share a simple but heartfelt wish: for her to live life to the fullest, always staying cheerful and positive.
When asked if she had a message for readers, Rachelle said:
“Thank you for reading my story. I hope that I will inspire you all.”
World Prematurity Day is observed every year on November 17 – it is a global awareness day dedicated to highlighting the challenges and impact of preterm birth. It serves as a powerful reminder of the urgent need to improve care for preterm infants and support for their families around the world. This year’s theme is “Give preterm babies a strong start for a brighter future.” – a message that calls for urgent action to improve the health and well-being of preterm babies from the very beginning. A strong start in life helps these babies grow, thrive, and reach their full potential. It is not only the right thing to do – it’s also a smart investment in healthier, stronger societies.
Make a difference today - support Club Rainbow’s children like Rachelle
A Heart Full of Joy: Zoe’s Journey of Hope, Faith, and Love
Zoe Ng
With a radiant smile and eyes filled with wonder, Zoe is a little girl who exudes joy, love, and an unshakeable confidence in the goodness of life. Mr Ng, Zoe’s caregiver, describes her as a joyful, hope-filled, love-filled girl who knows she is very loved and celebrated, and is confident that life and the future hold wonderfully good plans for her.
Embracing Life with Courage
Zoe was born with congenital harlequin ichthyosis, a rare and severe skin condition that affects the rate at which her skin regenerates. This accelerated growth causes constant shedding and a rough, scaly skin texture. While in the womb, the condition cut off the blood supply to her hands, leading to necrosis and eventual auto-amputation within her first few days of life.
The condition also presents ongoing challenges: her skin’s protective barrier is compromised, making her vulnerable to temperature changes and infections. The skin around her eyes doesn’t allow her eyelids to fully close, risking dryness of the eyes and potential damage to her corneas. Her toes are also affected by thickened skin, causing some of them to curl up, which can distort their growth and structure.
Yet, Mr Ng does not dwell on the difficulties. Instead, he speaks of grace, resilience, and their family’s unwavering faith as Christians. “Every seeming challenge has been very smoothly overcome,” they share. “God knows when to bring gracious people to us at different seasons, and through all seasons, always keep us encouraged and well-supplied.”
A Joyful Discovery
Zoe’s journey with Club Rainbow (Singapore) began before she turned one, although the family only started participating in the programmes and activities a few years later. It was through one such initiative — Club Rainbow’s Kris Kringle programme — that they experienced the warm embrace of the Club Rainbow community. Every year, families are invited to submit a small wish that their child would love to receive for Christmas under Club Rainbow’s Kris Kringle Programme.
During a past edition of Kris Kringle, Zoe wished for art materials to express her creativity, and the donor went the extra mile to ensure she received what she loved — even working with the family to find suitable alternatives when certain items weren’t available. It was a gesture that spoke volumes of care and thoughtfulness.
Club Rainbow has also become more than just a support network — it has broadened the family’s perspective of the world. “It has opened up our social circle and increased our awareness of various needs everywhere,” they reflect. “It’s also made us more aware of kindness and courage all around us.”
A Celebration to Remember
One of the most treasured memories came from a Christmas celebration at Concorde Hotel. “We were treated to a very special programme — the lighting of the Christmas tree, a choir performance, games, a lucky draw, and an absolutely sumptuous dinner,” Mr Ng recalls. “We really felt like royalty.”
More than just an outing, the experience was a reminder of the kindness and generosity that exist in the world — which Zoe and her loved ones are thankful for.
A Word of Thanks
To the donors and partners who bring Kris Kringle to life each year, Mr Ng expresses heartfelt gratitude:
“Thank you for caring, for showing grace, and for taking time and effort to express that care. Your service to us, even while managing your own needs, is noble. May your own needs be met by gracious people whom God sends your way.”
A Call to Love and Grace
To anyone considering donating or fundraising for Kris Kringle, their message is simple:
“Thank you for your willingness to bless those you do not know personally. May your heart keep growing in love and grace.”
Zoe’s story is one of resilience, faith, and the quiet power of love — both given and received. It’s a reminder that even in the face of life’s toughest challenges, joy and hope can still shine brightly.
Support our children like Zoe via #DiamondsofResilience Fundraising Campaign. Every donation also brings a double blessing: Thanks to Tote Board’s dollar-for-dollar matching, your contribution will go twice as far in brightening the lives of our children this holiday season.
Share the gift of hope and make this season brighter for our children - donate today, start your own fundraising campaign or spread the word with #SpreadRainbowCheer #DiamondsofResilience!
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
Beating the Odds with a Smile: Chevelle’s Journey of Courage and Joy
From the very beginning, Chevelle has proven herself to be a fighter. Born prematurely at just 33 weeks and 6 days, weighing only 1.4kg, she arrived into the world already battling immense odds. She received her first blood transfusion while still in her mother’s womb at 27 weeks gestation, and after birth, spent her first month in the Neonatal Intensive Care Unit (NICU). Chevelle was diagnosed with hydrops fetalis—a rare and serious condition in which excessive fluid accumulates in a baby’s body. This can affect organs such as the heart, lungs, and abdomen, and if left untreated, it can be fatal. In Chevelle’s case, it caused her heart to enlarge and fluid to build up in her body. During that one month stay at NICU, she underwent multiple blood transfusions and also received intensive treatment for severe jaundice.
Despite the grim prognosis, Chevelle defied the odds. Doctors at KK Women’s and Children’s Hospital (KKH) diagnosed her with alpha major thalassaemia—a rare genetic blood disorder where the body is unable to produce red blood cells. Incredibly, she became Singapore’s first known survivor of the condition. With the support of a dedicated medical team, she began receiving monthly blood transfusions to stay alive.
At just 2.5 years old, Chevelle underwent a groundbreaking haploidentical stem cell transplant using her father’s cells—the first alpha major thalassaemia patient to undergo this procedure. The two-year treatment journey included rounds of chemotherapy and frequent hospital visits. “She needed to shave her head and was bald for two years,” her mother, Ms Chan, recalls.
By the age of four, her health stabilised enough for her to begin attending Early Intervention Programme for Infants and Children (EIPIC) School, despite being diagnosed with global developmental delay and speech delay earlier. However, Chevelle often falls ill and needs to miss school, which can be difficult for both her and her family. Last year, she was also diagnosed with Oppositional Defiant Disorder (ODD), which presents additional behavioural challenges at home. Still, Chevelle remains energetic and full of life. “She is active and cheerful,” Ms Chan shares.
A Spark of Joy at Christmas
Chevelle’s family first joined Club Rainbow (Singapore) through a KKH nurse’s recommendation. Subsequently, they learnt about Club Rainbow’s Kris Kringle programme through a text message. Every year, families are invited to submit a small wish that their child would love to receive for Christmas.
Last December, Chevelle asked for a basketball and a badminton set—gifts that reflected her growing enthusiasm during school PE lessons. “Her legs and muscles had grown stronger, and she started showing interest in sports,” Ms Chan shared proudly.
Receiving her Kris Kringle gifts brought Chevelle immense joy. She was also able to take part in special outings and workshops under Club Rainbow. “Chevelle was excited when she received her Kris Kringle gifts. Chevelle also loves exploring fun and exciting places,” Ms Chan recalls. These experiences became treasured moments for the family. “(Kris Kringle) brings such heartwarming feelings for both the caregiver like myself and the beneficiary, it truly makes the beneficiary feel so happy and excited.”
A Community of Support
Beyond Christmas cheer, Club Rainbow has provided consistent, meaningful opportunities throughout Chevelle’s journey. She eagerly attends art classes and joins hip hop and K-pop dance lessons with gusto. “She loves these lessons,” Ms Chan says. “Club Rainbow also supports caregivers like me. I started to join their caregiver programmes last year—and having childminding available made it possible.”
A Message of Gratitude
To the donors, sponsors and partners who make Kris Kringle possible each year, Chevelle’s family offers heartfelt thanks:
“Thank you for making our children happy and giving them a wonderful Christmas.”
And to anyone considering supporting the programme this year:
“Please donate—you’ll bring a smile to a child’s face and spark joy this Christmas.”
Support our children like Chevelle via #DiamondsofResilience Fundraising Campaign. Every donation also brings a double blessing: Thanks to Tote Board’s dollar-for-dollar matching, your contribution will go twice as far in brightening the lives of our children this holiday season.
Share the gift of hope and make this season brighter for our children - donate today, start your own fundraising campaign or spread the word with #SpreadRainbowCheer #DiamondsofResilience!
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
World Cerebral Palsy Day (6 October 2025): Darwisy’s Journey of Resilience and Hope
At just 15 months old, Darwisy was diagnosed with Spastic Diplegic Cerebral Palsy. Now 16, he continues to face daily physical challenges that require constant caregiving support. Yet, his journey has been marked by resilience, determination, and a quiet strength that inspires those around him.
Despite the hurdles, Darwisy has embraced education with perseverance. He attended mainstream school, successfully completed his PSLE in 2021, and is now preparing for his ‘N’ Level examinations this year — a milestone that fills his mother with immense pride.
Since 2017, Club Rainbow (Singapore) has journeyed alongside Darwisy and his family, providing support in many meaningful ways. From the Club Rainbow Family Retreat and yearly bursaries to invaluable transport services to and from hospitals, the help has eased their burden significantly. As a single-income parent, his mother shares that transport costs of $60–$80 per trip were once their heaviest financial strain — a load that Club Rainbow’s support has helped to lighten.
Although his condition means that he can only participate in limited activities, Darwisy cherishes every opportunity. His happiest moment came in 2023, when Make-A-Wish Singapore granted his dream of meeting Liverpool Football Club — a memory he continues to treasure with joy and gratitude.
In recent times, health challenges such as recurring tummy issues have made school attendance more difficult. Through it all, his mother’s greatest wish remains simple: that Darwisy stays healthy and happy, free to enjoy life at his own pace.
Outside of health, the family also faces accessibility barriers in public spaces. Something as ordinary as taking a lift in a shopping mall can become stressful when people do not give way — small moments that underline the importance of empathy and awareness toward persons with disabilities.
As World Cerebral Palsy Day is marked this year, Darwisy and his family express deep gratitude to those who have supported them through their journey. Darwisy’s hope is simple yet profound: that society embraces greater kindness, understanding, and empathy towards those with disabilities — because even the smallest act can make a world of difference.
World Cerebral Palsy Day is a worldwide movement where every year on October 6, millions of people come together to recognise, celebrate, and take action for the 50 million people living with Cerebral Palsy (CP). CP is the most common lifelong physical disability, and yet it remains one of the most underfunded and overlooked disability and global health issues. Many people living with CP also face many barriers – lack of access to healthcare and education, social exclusion and employment discrimination. World Cerebral Palsy Day aims to change that through recognition, inclusion, and action – it is a day to celebrate the achievements of the CP community, challenge barriers, and push for a more accessible, inclusive world.
Make a difference today - support Club Rainbow’s children like Darwisy
Annabel’s Journey: Shining Through Challenges
Annabel Ong
Annabel with her family
This Children’s Day, we are proud to shine a light on Annabel – a determined, responsible, and caring young girl who inspires those around her with her resilience.
Annabel lives with Congenital Central Hypoventilation Syndrome (CCHS), an extremely rare lifelong genetic disorder that affects the body’s automatic control of breathing during sleep. To manage this condition, she requires mechanical ventilation at night. Despite these challenges, Annabel never lets her condition hold her back from pursuing her goals and dreams.
Annabel joined Club Rainbow (Singapore) in 2018 after being referred by her homecare nurse and doctor from KK Women’s and Children’s Hospital (KKH). Since then, her family has found strength and support through caregiver and peer connections, as well as the many events that bring families together and Club Rainbow’s efforts in raising social awareness about children with chronic illnesses.
One of the things her family admires most about Annabel is her bravery and determination. Even when faced with difficulties in school—whether academic or emotional—she never gives up. She takes on each challenge with courage, proving that she can thrive independently even when her parents are not by her side.
Outside of school, Annabel loves drawing, listening to music, singing, and caring for small animals. Looking ahead, her biggest goal is to pass her Primary School Leaving Examination (PSLE)—a milestone she is working diligently towards. Her parents’ greatest hope is that she will always be able to meet her medical and daily needs with ease, and live a life free of worries.
When asked what message she would like to share with other children this Children’s Day, Annabel offered these heartfelt words:
“I wish that all the children will not feel sad about their illness and be happy every moment.”
Make a difference today - support Club Rainbow’s children like Annabel
Ride & Ralk for Rainbows 2025 - Riding for a Cause Close to His Heart: Sharil’s Ride & Ralk for Rainbows Journey
Meet Muhammad Sharil Bin Abdul Hamid, a 35-year-old Logistics Assistant Operations Manager, former child of Club Rainbow (Singapore), and a passionate volunteer. Sharil wore many hats in the Club Rainbow community – from Youth Committee Member to Camp Rainbow Volunteer. Now, he's giving back to the organisation that once supported him and his family through tough times.
Sharil first encountered Ride for Rainbows years ago and joined as a rider in 2015, 2019, and virtually in 2021. “It started off as a way to combine my love for cycling with a good cause,” he shares. “But it became much more than that.”
When COVID-19 disrupted physical rides, the event evolved into Ride & Ralk for Rainbows – a hybrid of riding and running/walking to raise funds and awareness for children with chronic illnesses and their families. Though work and family commitments kept him from joining the newer editions, the cause remained close to his heart.
“What inspires me is remembering how Club Rainbow was there for me and my family,” Sharil says. “Now that I’ve ‘graduated,’ I want to do the same for others – to bring a smile to children and families going through their own journeys.”
Sharil fondly remembers Ride for Rainbows 2019, where he had the special opportunity to ride alongside other passionate individuals – and the joy of sharing the experience with his wife, who was volunteering at Marina Barrage.
Of course, the journey hasn’t always been smooth. From muscle cramps during his first ride to struggling to raise donations post-pandemic, Sharil has faced his share of challenges. But he took each hurdle in stride – training better, sharing his story online, and pushing forward with purpose.
“Riding 60km can be gruelling,” he admits. “But it’s nothing compared to what our Club Rainbow children and families face every day. That thought alone keeps me going.”
To those considering joining Ride & Ralk for Rainbows for the first time, Sharil has one message:
“Imagine making a real difference while having an amazing time! Changing lives one step at a time. Let’s make these children smile and have a great time together!”
Join Sharil and the rest of the Club Rainbow family at Ride & Ralk for Rainbows 2025 – where every step and pedal brings us closer to a brighter tomorrow. Register or donate now: https://www.rideforrainbows.org
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore