World Prematurity Day (17 November 2025): Rachelle’s Journey of Joy and Determination
Born as one of a set of triplets, Rachelle came into the world ahead of time — a tiny fighter with a big spirit. Now 18 years old, she studies at Cerebral Palsy Alliance Singapore School, where her cheerful nature and determination continue to shine through each day.
Rachelle was diagnosed with severe Dystonic Cerebral Palsy and quadriplegia when she was about one year old. Despite having zero mobility, she has not let her condition define her. Cognitively strong and expressive, Rachelle communicates clearly and radiates positivity to those around her.
Using an assistive “sip and puff” switch, Rachelle independently manoeuvres her motorised wheelchair and navigates her iPad. Through this same adaptive technology, she channels her creativity into digital design using platforms like Canva and Linearity Curve — skills that have opened up new worlds of independence and self-expression.
Rachelle and her family were first introduced to Club Rainbow (Singapore) in 2021 through her rehabilitation team at KK Women’s and Children’s Hospital. Since then, Club Rainbow has supported her through subsidised home physiotherapy sessions and opportunities to join social programmes and events. One of her most memorable experiences was the Club Rainbow Family Retreat cruise, where she and her family shared meaningful time together.
Despite the challenges she faces, Rachelle’s joyful outlook has made her a beloved student among teachers and therapists alike. When she’s not designing or exploring new digital tools, she enjoys watching TV, going out to eat, and travelling with her family. Her biggest dreams? To visit Disneyland in Japan and explore Labubu Land in Shanghai — adventures that reflect her bright, imaginative spirit.
Rachelle’s parents share a simple but heartfelt wish: for her to live life to the fullest, always staying cheerful and positive.
When asked if she had a message for readers, Rachelle said:
“Thank you for reading my story. I hope that I will inspire you all.”
World Prematurity Day is observed every year on November 17 – it is a global awareness day dedicated to highlighting the challenges and impact of preterm birth. It serves as a powerful reminder of the urgent need to improve care for preterm infants and support for their families around the world. This year’s theme is “Give preterm babies a strong start for a brighter future.” – a message that calls for urgent action to improve the health and well-being of preterm babies from the very beginning. A strong start in life helps these babies grow, thrive, and reach their full potential. It is not only the right thing to do – it’s also a smart investment in healthier, stronger societies.
Make a difference today - support Club Rainbow’s children like Rachelle
International Day of Persons with Disabilities (PWDs) (3 December 2025): Wilbur’s Journey of Courage, Positivity and Strength
Wilbur (first from right) with his siblings
Wilbur with his family
Born on 1 January 2012, Wilbur came into the world as a joyful New Year’s baby. His early years were filled with laughter and milestones, but his parents noticed that he was slower to walk and often lost his balance. Though doctors initially advised that it was too early to tell if anything was wrong, further observations eventually led to a referral to the National University Hospital (NUH) for genetic testing. In 2017, Wilbur was diagnosed with Duchenne muscular dystrophy, a progressive condition that causes muscle weakness over time.
Despite the challenges that came his way, Wilbur continues to show courage and resilience in every part of his journey.
Wilbur, who has one older sister and two younger brothers, began his schooling at Keming Primary School in 2019. When he started using a wheelchair, the school went above and beyond to ensure accessibility, even modifying the campus with ramps and raised pathways so Wilbur could move around with greater ease. “The school was very supportive,” shares his mother with gratitude. By the end of 2021, Wilbur had transitioned to a motorised wheelchair, gaining more independence.
Wilbur at a Boccia Competition
Now a student at Hillgrove Secondary School, Wilbur continues to thrive. His school has also been proactive in supporting his needs, and in August 2025, he proudly represented Hillgrove in Play Inclusive — Singapore’s largest inclusive sports event. There, he discovered boccia, a precision ball sport designed for athletes with physical disabilities, which has since become his co-curricular activity (CCA). Just a few months later, in November 2025, Wilbur won a silver medal in his first official competition representing the Muscular Dystrophy Association (Singapore).
Wilbur joined Club Rainbow (Singapore) in 2022, after being introduced through a social worker from KK Women’s and Children’s Hospital (KKH). Since then, Club Rainbow has supported his family with transport services to medical appointments — a crucial lifeline that lightens their daily load — and celebrates his special day each year with a birthday cake voucher, bringing a smile to his face.
When he’s not in school or training, Wilbur enjoys playing mobile games, a hobby that keeps him entertained and connected with friends. While he’s still exploring what the future holds, his parents’ hope is simple yet heartfelt — that he will one day be able to “find a simple job and earn a living for himself.”
Wilbur’s positive outlook continues to inspire those around him. His message to others is one that beautifully captures his spirit:
“Be positive and see things in a happier way.”
This International Day of Persons with Disabilities, we celebrate Wilbur’s courage, optimism, and the unwavering support of his family — a reminder that with inclusion, understanding, and hope, every child can thrive and chase their dreams.
International Day of Persons with Disabilities (PWDs) is observed every year on 3 December – This United Nations-recognised day aims to promote understanding and acceptance of people with disabilities, raise awareness of disability issues, and mobilise support for the inclusion of persons with disabilities in all aspects of life.
Make a difference today - support Club Rainbow’s children like Wilbur
A Heart Full of Joy: Zoe’s Journey of Hope, Faith, and Love
Zoe Ng
With a radiant smile and eyes filled with wonder, Zoe is a little girl who exudes joy, love, and an unshakeable confidence in the goodness of life. Mr Ng, Zoe’s caregiver, describes her as a joyful, hope-filled, love-filled girl who knows she is very loved and celebrated, and is confident that life and the future hold wonderfully good plans for her.
Embracing Life with Courage
Zoe was born with congenital harlequin ichthyosis, a rare and severe skin condition that affects the rate at which her skin regenerates. This accelerated growth causes constant shedding and a rough, scaly skin texture. While in the womb, the condition cut off the blood supply to her hands, leading to necrosis and eventual auto-amputation within her first few days of life.
The condition also presents ongoing challenges: her skin’s protective barrier is compromised, making her vulnerable to temperature changes and infections. The skin around her eyes doesn’t allow her eyelids to fully close, risking dryness of the eyes and potential damage to her corneas. Her toes are also affected by thickened skin, causing some of them to curl up, which can distort their growth and structure.
Yet, Mr Ng does not dwell on the difficulties. Instead, he speaks of grace, resilience, and their family’s unwavering faith as Christians. “Every seeming challenge has been very smoothly overcome,” they share. “God knows when to bring gracious people to us at different seasons, and through all seasons, always keep us encouraged and well-supplied.”
A Joyful Discovery
Zoe’s journey with Club Rainbow (Singapore) began before she turned one, although the family only started participating in the programmes and activities a few years later. It was through one such initiative — Club Rainbow’s Kris Kringle programme — that they experienced the warm embrace of the Club Rainbow community. Every year, families are invited to submit a small wish that their child would love to receive for Christmas under Club Rainbow’s Kris Kringle Programme.
During a past edition of Kris Kringle, Zoe wished for art materials to express her creativity, and the donor went the extra mile to ensure she received what she loved — even working with the family to find suitable alternatives when certain items weren’t available. It was a gesture that spoke volumes of care and thoughtfulness.
Club Rainbow has also become more than just a support network — it has broadened the family’s perspective of the world. “It has opened up our social circle and increased our awareness of various needs everywhere,” they reflect. “It’s also made us more aware of kindness and courage all around us.”
A Celebration to Remember
One of the most treasured memories came from a Christmas celebration at Concorde Hotel. “We were treated to a very special programme — the lighting of the Christmas tree, a choir performance, games, a lucky draw, and an absolutely sumptuous dinner,” Mr Ng recalls. “We really felt like royalty.”
More than just an outing, the experience was a reminder of the kindness and generosity that exist in the world — which Zoe and her loved ones are thankful for.
A Word of Thanks
To the donors and partners who bring Kris Kringle to life each year, Mr Ng expresses heartfelt gratitude:
“Thank you for caring, for showing grace, and for taking time and effort to express that care. Your service to us, even while managing your own needs, is noble. May your own needs be met by gracious people whom God sends your way.”
A Call to Love and Grace
To anyone considering donating or fundraising for Kris Kringle, their message is simple:
“Thank you for your willingness to bless those you do not know personally. May your heart keep growing in love and grace.”
Zoe’s story is one of resilience, faith, and the quiet power of love — both given and received. It’s a reminder that even in the face of life’s toughest challenges, joy and hope can still shine brightly.
Support our children like Zoe via #DiamondsofResilience Fundraising Campaign. Every donation also brings a double blessing: Thanks to Tote Board’s dollar-for-dollar matching, your contribution will go twice as far in brightening the lives of our children this holiday season.
Share the gift of hope and make this season brighter for our children - donate today, start your own fundraising campaign or spread the word with #SpreadRainbowCheer #DiamondsofResilience!
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
International Volunteer Day (5 December 2025): Through Wei Song’s Lens - Capturing Hope, One Frame at a Time
This International Volunteer Day, we shine the spotlight on one of our dedicated volunteers whose quiet artistry has touched countless hearts. Through his lens, Wei Song has helped capture the laughter, love, and courage that define our children and families at Club Rainbow (Singapore). His story reminds us that every act of giving — no matter how small — can create ripples of hope and connection.
By day, Wei Song works as an AI software engineer — thoughtful, methodical, and immersed in technology. But when he picks up his camera, a different world opens up. Through the lens, he sees more than faces and frames — he sees resilience, connection, and the quiet strength that fills every Club Rainbow event he supports.
Wei Song recalls the moment he first started photography. “I first took a photo when I was five,” he recalls. “It was of my infant sister sleeping.”
It wasn’t until 2014 that Wei Song bought his first camera and began exploring photography in earnest. A chance encounter on ClubSnap, previously used to be a photography forum, set him on an unexpected path. “It was very coincidental as I was looking for opportunities to volunteer, and there was a call for volunteers” he shared.
Preparation for each volunteering event starts the day before – “My camera has to be charged, memory card prepared, and reading through the event details provided,” Wei Song says. “On the day itself, I grab a coffee on the way to the venue or when I manage to catch a break during the event. I would also check in with the organisers to look out for and start capturing the key moments. After the event, it’s back home for post-processing before sending the photos to the organisers.”
For Wei Song, photography is more than just documentation — it’s storytelling. “Photographs capture a precious moment in time,” he says. “Based on that moment in time, there could be a story or cause that people can understand and resonate with, without language barriers.”
Among the many images he has taken, specific moments resonate with him most. “Moments where the children can be themselves because they know the befrienders and organisers have their backs!” shares Wei Song.
Photo taken by Wei Song at Celebrating Heroes 2024
Photo taken by Wei Song at Camp Rainbow 2024
Of course, photographing at events with children comes with its own set of challenges. “I try to avoid using flash as some of the children are light-sensitive,” Wei Song explains. “Thus, it can be challenging to find the right amount of light for photos, so I often plead with the organisers to switch on more lights, if possible,” he adds.
Over time, the people and moments he has captured have profoundly inspired and shaped the way he sees the world – The children’s strong will, grit and mindsets that keep them going. The parents’ unconditional love for their children. Camp Rainbow volunteers (Camp Rainbow is Club Rainbow’s annual biggest and only medically-supervised 3D2N camp for children with chronic illnesses, aged between 6 to 16 years old. Camp Rainbow is entirely volunteer-driven) and Club Rainbow staff’s unbridled passion that powers them.
What keeps him going is the joy of seeing growth, both in the children he photographs and in himself. “It’s about capturing the unadulterated expressions of kids enjoying the well thought out events and watching some of them grow and become more matured!”
As the world celebrates International Volunteer Day, Wei Song hopes others will discover the same quiet fulfilment that volunteering has brought him:
“Volunteering has opened my eyes to scenes of vulnerability and resilience I never would have encountered otherwise. witnessing, and sometimes capturing these moments has helped me to grow, to reflect, and to see life’s small, ordinary gifts with new clarity. I often feel I receive more than I give; volunteering has made me appreciate life in ways I never expected. So, dive right in if you feel like trying, you’ll leave richer than you imagine!”
At Club Rainbow, our volunteers are the heart of what we do — bringing their time, talents, and compassion to uplift the lives of our children with chronic illnesses and their families. This International Volunteer Day, we celebrate individuals like Wei Song, whose dedication reminds us that even the smallest acts of kindness can make a world of difference.
Thank you to all our volunteers for colouring our rainbow with your light!
A Family Bound by Love — The Ngeiw Family’s Journey of Strength, Care and Hope
The Ngeiw Family
For the Ngeiw family, every day is a story of love, resilience, and togetherness. Parents to three wonderful boys — Chen Kang, Chen Rui, and Chen An — they have embraced life’s challenges with open hearts and unwavering faith, drawing strength from one another.
The eldest, Chen Kang, is a caring and responsible young boy who loves reading and drawing. He shares a special bond with his brothers, especially Chen Rui. Whether he’s helping to prepare medication, setting up the bath chair, or reading bedtime stories to both Chen Rui and Chen An, Chen Kang’s nurturing, protective nature shines through. When Chen Rui came home after a long stay in Singapore General Hospital (SGH)’s Intensive Care Unit (ICU), Chen Kang instinctively understood that his brother needed extra care — and he has been his gentle protector ever since.
Chen Rui, the middle child, lives with severe cerebral palsy and spastic quadriplegia due to a lack of oxygen at birth. Despite his medical challenges, he fills the home with joy. He is currently schooling at Cerebral Palsy Alliance Singapore (CPAS), where he enjoys the company of his teachers and friends, and his face lights up whenever he hears his favourite songs or stories. He loves outings to Changi Airport, museums, or East Coast Park. Chen Rui communicates through gestures, facial expressions, and assistive communication tools such as the Big Mack and Head Switch, allowing his vibrant personality to shine through in his own unique way.
The youngest, Chen An, is both artistic and athletic. He loves drawing and origami, and has a passion for cycling and swimming. Much like Chen Kang, he showers Chen Rui with love and care — helping to push his wheelchair during family outings and playing ball with him during therapy sessions.
Navigating Life with Courage
Each of the Ngeiw siblings faces their own set of health challenges.
Chen Kang was diagnosed with hypothyroidism at two months old and underwent surgery to address kidney scarring caused by urine reflux. Chen Rui, due to his condition, depends entirely on his caregivers for daily needs and requires Percutaneous Endoscopic Gastrostomy (PEG) tube feeding for nutrition, as well as frequent Clean Intermittent Catheterization (CIC) to prevent bladder stones. Meanwhile, Chen An manages childhood asthma after being born prematurely.
Despite the complexities of their routines, the Ngeiw family have found strength in unity. Yet, the holiday season often presents a significant challenge: finding suitable places to bring Chen Rui. “Many venues lack the necessary accommodations for individuals with special needs, such as a full-size changing bed for a growing teenager's diaper changes or amenities for PEG tube feeding,” Ms Quek, mother of the Ngeiw siblings, shares. This challenge is amplified when considering overseas road trips, like to Malaysia. “Long drives are difficult for Chen Rui as he cannot endure extended periods in his wheelchair, requiring much more frequent nature breaks, CIC, and tube feeding stops.”
Finding a Community in Club Rainbow (Singapore)
Their journey with Club Rainbow (Singapore) began years ago, through Ms Sally from Club Rainbow at KK Women’s and Children’s Hospital (KKH). Since then, Club Rainbow has become a cherished support system for the family.
Every year under Club Rainbow’s Kris Kringle programme, families are invited to submit a small wish that their child would love to receive for Christmas under Kris Kringle. Through Kris Kringle, the Ngeiw siblings have received thoughtful gifts — musical night lights, Nerf guns, and headphones — each bringing smiles and festive cheer to their faces. They have also enjoyed taking part in heartwarming holiday events and workshops, such as the Christmas party at KKH, a robotics workshop, a Black Soldier Fly workshop. In 2024, the Ngeiw family also took part in Club Rainbow Family Retreat, a memorable cruise to Penang.
“These experiences were a perfect chance to bond and spend quality time together,” Ms Quek reflects. “We got to reflect on ourselves and deepen our relationships. We truly treasure these valuable memories!”
The Gift of Support and Community
Over the years, Club Rainbow has been an invaluable partner to the Ngeiw family. The transport service to and from KKH, for example, has been a lifesaver for Chen Rui, allowing the family to attend hospital appointments punctually and return home in time for his critical routine of CIC, shower and tube feeding.
The education awards offered by Club Rainbow also serve as powerful motivation for Chen Kang and Chen An, encouraging them to work hard and do their best in their learning, giving them recognition for their efforts. And every Christmas, the Kris Kringle programme — complete with handwritten notes from anonymous donors — bring warmth and love into their home.
“We are truly grateful for this kindness,” Ms Quek says. “It adds a lovely touch of festive joy to our family.”
A Message of Gratitude and Hope
To the donors and partners who make Kris Kringle possible, the Ngeiw family has a heartfelt message:
“Our deepest gratitude goes out to the donors and partners who brought the magic of Kris Kringle to life. We are immensely appreciative of the time and kindness you have shown to every child at Club Rainbow. In today's busy society, it is profoundly heartwarming to see donors who not only remember and care for children with special needs but who also take the time to ensure their gifts are sent from the heart, filled with love and empathy. Thank you very much for your selfless sacrifice. Your dedication lights up our festive season and the joy you gifted has truly touched all of us.”
And to those who may be considering donating or fundraising for Kris Kringle this year, they share a message of encouragement:
“The reach of your gift of love and kindness is immeasurable. Your generosity creates a ripple effect, ensuring that kindness will beget kindness as one good deed naturally sparks others. This mutual support and compassion are what will strengthen our community and nation for generations to come.”
The Ngeiw family’s story is one of courage, connection, and hope — a reminder that with love and support, even the most challenging journeys can be filled with light.
Support our children like the Ngeiw siblings via #DiamondsofResilience Fundraising Campaign. Every donation also brings a double blessing: Thanks to Tote Board’s dollar-for-dollar matching, your contribution will go twice as far in brightening the lives of our children this holiday season.
Share the gift of hope and make this season brighter for our children - donate today, start your own fundraising campaign or spread the word with #SpreadRainbowCheer #DiamondsofResilience!
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
Beating the Odds with a Smile: Chevelle’s Journey of Courage and Joy
From the very beginning, Chevelle has proven herself to be a fighter. Born prematurely at just 33 weeks and 6 days, weighing only 1.4kg, she arrived into the world already battling immense odds. She received her first blood transfusion while still in her mother’s womb at 27 weeks gestation, and after birth, spent her first month in the Neonatal Intensive Care Unit (NICU). Chevelle was diagnosed with hydrops fetalis—a rare and serious condition in which excessive fluid accumulates in a baby’s body. This can affect organs such as the heart, lungs, and abdomen, and if left untreated, it can be fatal. In Chevelle’s case, it caused her heart to enlarge and fluid to build up in her body. During that one month stay at NICU, she underwent multiple blood transfusions and also received intensive treatment for severe jaundice.
Despite the grim prognosis, Chevelle defied the odds. Doctors at KK Women’s and Children’s Hospital (KKH) diagnosed her with alpha major thalassaemia—a rare genetic blood disorder where the body is unable to produce red blood cells. Incredibly, she became Singapore’s first known survivor of the condition. With the support of a dedicated medical team, she began receiving monthly blood transfusions to stay alive.
At just 2.5 years old, Chevelle underwent a groundbreaking haploidentical stem cell transplant using her father’s cells—the first alpha major thalassaemia patient to undergo this procedure. The two-year treatment journey included rounds of chemotherapy and frequent hospital visits. “She needed to shave her head and was bald for two years,” her mother, Ms Chan, recalls.
By the age of four, her health stabilised enough for her to begin attending Early Intervention Programme for Infants and Children (EIPIC) School, despite being diagnosed with global developmental delay and speech delay earlier. However, Chevelle often falls ill and needs to miss school, which can be difficult for both her and her family. Last year, she was also diagnosed with Oppositional Defiant Disorder (ODD), which presents additional behavioural challenges at home. Still, Chevelle remains energetic and full of life. “She is active and cheerful,” Ms Chan shares.
A Spark of Joy at Christmas
Chevelle’s family first joined Club Rainbow (Singapore) through a KKH nurse’s recommendation. Subsequently, they learnt about Club Rainbow’s Kris Kringle programme through a text message. Every year, families are invited to submit a small wish that their child would love to receive for Christmas.
Last December, Chevelle asked for a basketball and a badminton set—gifts that reflected her growing enthusiasm during school PE lessons. “Her legs and muscles had grown stronger, and she started showing interest in sports,” Ms Chan shared proudly.
Receiving her Kris Kringle gifts brought Chevelle immense joy. She was also able to take part in special outings and workshops under Club Rainbow. “Chevelle was excited when she received her Kris Kringle gifts. Chevelle also loves exploring fun and exciting places,” Ms Chan recalls. These experiences became treasured moments for the family. “(Kris Kringle) brings such heartwarming feelings for both the caregiver like myself and the beneficiary, it truly makes the beneficiary feel so happy and excited.”
A Community of Support
Beyond Christmas cheer, Club Rainbow has provided consistent, meaningful opportunities throughout Chevelle’s journey. She eagerly attends art classes and joins hip hop and K-pop dance lessons with gusto. “She loves these lessons,” Ms Chan says. “Club Rainbow also supports caregivers like me. I started to join their caregiver programmes last year—and having childminding available made it possible.”
A Message of Gratitude
To the donors, sponsors and partners who make Kris Kringle possible each year, Chevelle’s family offers heartfelt thanks:
“Thank you for making our children happy and giving them a wonderful Christmas.”
And to anyone considering supporting the programme this year:
“Please donate—you’ll bring a smile to a child’s face and spark joy this Christmas.”
Support our children like Chevelle via #DiamondsofResilience Fundraising Campaign. Every donation also brings a double blessing: Thanks to Tote Board’s dollar-for-dollar matching, your contribution will go twice as far in brightening the lives of our children this holiday season.
Share the gift of hope and make this season brighter for our children - donate today, start your own fundraising campaign or spread the word with #SpreadRainbowCheer #DiamondsofResilience!
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
World Cerebral Palsy Day (6 October 2025): Darwisy’s Journey of Resilience and Hope
At just 15 months old, Darwisy was diagnosed with Spastic Diplegic Cerebral Palsy. Now 16, he continues to face daily physical challenges that require constant caregiving support. Yet, his journey has been marked by resilience, determination, and a quiet strength that inspires those around him.
Despite the hurdles, Darwisy has embraced education with perseverance. He attended mainstream school, successfully completed his PSLE in 2021, and is now preparing for his ‘N’ Level examinations this year — a milestone that fills his mother with immense pride.
Since 2017, Club Rainbow (Singapore) has journeyed alongside Darwisy and his family, providing support in many meaningful ways. From the Club Rainbow Family Retreat and yearly bursaries to invaluable transport services to and from hospitals, the help has eased their burden significantly. As a single-income parent, his mother shares that transport costs of $60–$80 per trip were once their heaviest financial strain — a load that Club Rainbow’s support has helped to lighten.
Although his condition means that he can only participate in limited activities, Darwisy cherishes every opportunity. His happiest moment came in 2023, when Make-A-Wish Singapore granted his dream of meeting Liverpool Football Club — a memory he continues to treasure with joy and gratitude.
In recent times, health challenges such as recurring tummy issues have made school attendance more difficult. Through it all, his mother’s greatest wish remains simple: that Darwisy stays healthy and happy, free to enjoy life at his own pace.
Outside of health, the family also faces accessibility barriers in public spaces. Something as ordinary as taking a lift in a shopping mall can become stressful when people do not give way — small moments that underline the importance of empathy and awareness toward persons with disabilities.
As World Cerebral Palsy Day is marked this year, Darwisy and his family express deep gratitude to those who have supported them through their journey. Darwisy’s hope is simple yet profound: that society embraces greater kindness, understanding, and empathy towards those with disabilities — because even the smallest act can make a world of difference.
World Cerebral Palsy Day is a worldwide movement where every year on October 6, millions of people come together to recognise, celebrate, and take action for the 50 million people living with Cerebral Palsy (CP). CP is the most common lifelong physical disability, and yet it remains one of the most underfunded and overlooked disability and global health issues. Many people living with CP also face many barriers – lack of access to healthcare and education, social exclusion and employment discrimination. World Cerebral Palsy Day aims to change that through recognition, inclusion, and action – it is a day to celebrate the achievements of the CP community, challenge barriers, and push for a more accessible, inclusive world.
Make a difference today - support Club Rainbow’s children like Darwisy
Annabel’s Journey: Shining Through Challenges
Annabel Ong
Annabel with her family
This Children’s Day, we are proud to shine a light on Annabel – a determined, responsible, and caring young girl who inspires those around her with her resilience.
Annabel lives with Congenital Central Hypoventilation Syndrome (CCHS), an extremely rare lifelong genetic disorder that affects the body’s automatic control of breathing during sleep. To manage this condition, she requires mechanical ventilation at night. Despite these challenges, Annabel never lets her condition hold her back from pursuing her goals and dreams.
Annabel joined Club Rainbow (Singapore) in 2018 after being referred by her homecare nurse and doctor from KK Women’s and Children’s Hospital (KKH). Since then, her family has found strength and support through caregiver and peer connections, as well as the many events that bring families together and Club Rainbow’s efforts in raising social awareness about children with chronic illnesses.
One of the things her family admires most about Annabel is her bravery and determination. Even when faced with difficulties in school—whether academic or emotional—she never gives up. She takes on each challenge with courage, proving that she can thrive independently even when her parents are not by her side.
Outside of school, Annabel loves drawing, listening to music, singing, and caring for small animals. Looking ahead, her biggest goal is to pass her Primary School Leaving Examination (PSLE)—a milestone she is working diligently towards. Her parents’ greatest hope is that she will always be able to meet her medical and daily needs with ease, and live a life free of worries.
When asked what message she would like to share with other children this Children’s Day, Annabel offered these heartfelt words:
“I wish that all the children will not feel sad about their illness and be happy every moment.”
Make a difference today - support Club Rainbow’s children like Annabel
Ride & Ralk for Rainbows 2025 - Riding for a Cause Close to His Heart: Sharil’s Ride & Ralk for Rainbows Journey
Meet Muhammad Sharil Bin Abdul Hamid, a 35-year-old Logistics Assistant Operations Manager, former child of Club Rainbow (Singapore), and a passionate volunteer. Sharil wore many hats in the Club Rainbow community – from Youth Committee Member to Camp Rainbow Volunteer. Now, he's giving back to the organisation that once supported him and his family through tough times.
Sharil first encountered Ride for Rainbows years ago and joined as a rider in 2015, 2019, and virtually in 2021. “It started off as a way to combine my love for cycling with a good cause,” he shares. “But it became much more than that.”
When COVID-19 disrupted physical rides, the event evolved into Ride & Ralk for Rainbows – a hybrid of riding and running/walking to raise funds and awareness for children with chronic illnesses and their families. Though work and family commitments kept him from joining the newer editions, the cause remained close to his heart.
“What inspires me is remembering how Club Rainbow was there for me and my family,” Sharil says. “Now that I’ve ‘graduated,’ I want to do the same for others – to bring a smile to children and families going through their own journeys.”
Sharil fondly remembers Ride for Rainbows 2019, where he had the special opportunity to ride alongside other passionate individuals – and the joy of sharing the experience with his wife, who was volunteering at Marina Barrage.
Of course, the journey hasn’t always been smooth. From muscle cramps during his first ride to struggling to raise donations post-pandemic, Sharil has faced his share of challenges. But he took each hurdle in stride – training better, sharing his story online, and pushing forward with purpose.
“Riding 60km can be gruelling,” he admits. “But it’s nothing compared to what our Club Rainbow children and families face every day. That thought alone keeps me going.”
To those considering joining Ride & Ralk for Rainbows for the first time, Sharil has one message:
“Imagine making a real difference while having an amazing time! Changing lives one step at a time. Let’s make these children smile and have a great time together!”
Join Sharil and the rest of the Club Rainbow family at Ride & Ralk for Rainbows 2025 – where every step and pedal brings us closer to a brighter tomorrow. Register or donate now: https://www.rideforrainbows.org
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
Branda’s Story: A Volunteer Tutor’s Quiet Impact, Celebrated This Teachers’ Day
Branda
This Teachers’ Day, we celebrate not only those who teach within the walls of a classroom, but also those who quietly shape lives through patience, guidance, and kindness. Branda, a volunteer tutor from Nanyang Technological University (NTU) Welfare Services Club (WSC) Operation Hope, is one such individual. For the past two years, she has been offering her time and heart to support children at Club Rainbow (Singapore).
Branda’s motivation to start volunteering was simple — a natural affinity for working with children — but what kept her going was the desire to be a source of encouragement and consistent presence. “I’ve always enjoyed interacting with children,” she shares. “But joining Club Rainbow wasn’t just for the enjoyment of teaching, but the encouraging and consistent presence for children who might be facing more than just academic challenges.” Having faced academic challenges herself during childhood, Branda understood the significance of having someone who supports and believes in you. She saw tutoring as an opportunity to do for others what she had once needed herself — to help children build confidence, believe in their abilities, and strive towards their goals.
As a volunteer tutor, Branda mainly supports her tutee with queries she has on certain subjects. Typically, Branda would communicate online with her tutee and together, they discuss which subjects or topics to focus on for the week. Branda then carefully prepares the relevant materials accordingly, with the main focus being identifying and learning from mistakes using creative and easy-to-understand ways. While academic support is at the heart of these sessions, the conversations often go beyond textbooks. Branda would share tips on school transitions and also engage in small talk about life in general — slowly building a bond of trust and friendship.
In the early days, her tutee was really quiet, nervous and unsure of her own abilities. It was also difficult to tell when her tutee was struggling and figure out a teaching style that would suit her tutee’s learning. “She was hesitant to ask questions or to share with me her queries. This made it tougher for me to gauge if I was being clear enough or if she understood the explanation,” Branda recalls. Instead of pressing for answers, Branda tried a different approach: encouraging her tutee to explain concepts back in her own words. “Over time, she was also more open and willing to ask questions, which made our sessions more effective and enjoyable,” Branda shares. They soon discovered her tutee was a visual learner, and began incorporating zoomed in drawings, whiteboards and diagrams, and interactive tools into the sessions.
With each lesson like a small stepping stone, it was a chance to get to know Branda’s tutee better and gradually having more meaningful conversations. “From someone who used to tell me “I can’t do it”, to becoming “I know how to do it!”. Seeing that transition ‒ her becoming more confident in herself and speaking up more, gave me the sense of joy and warmth.” Branda remembers fondly.
To Branda, education support is more than an academic exercise — it’s about creating a safe, nurturing space where children feel seen and supported to learn and grow. Branda affirms, “Club Rainbow creates this platform where these children can freely ask questions or clarify their doubts, being able to seek help without the fear of being judged or feeling like they are falling behind. I feel this encourages the children to find that confidence within and feel supported in their learning journey, being able to receive the support they require.”
Over time, Branda has found that the children she tutors inspire and encourage her just as much. “While they may be of young age, having to handle academics and other difficulties, yet they always show up with a bubbly, bright spirit in them. Their energy and motivation always inspire me to keep on trying... It reminded me how important it was to stay optimistic, to celebrate the small wins along the way, and to not be afraid of failure.”
While not every session is perfect, Branda approaches each one with care and purpose.
“Some sessions turn out to be exciting and engaging, but it is also inevitable for some to be less fulfilling or productive. Treating each session as a small stepping stone keeps me motivated, as I know that my tutee is always learning something new each week, no matter how big or small ‒ it is part and parcel of a journey.”
As we honour educators this Teachers’ Day, Branda’s story reminds us that teaching doesn’t only happen in schools. Sometimes, it happens quietly — through encouragement, patience, and showing up, week after week.
To those considering volunteering, Branda has a message: “Don’t be afraid of trying and never underestimate the children you are working with. The resilience, joy and determination really go beyond what we think. Volunteering at Club Rainbow is not just about teaching, it is also about building meaningful relationships, learning and growing together with the children, being part of their journey. There is no need to be perfect, just be present, patient and willing to give it a go. The experience leaves a lasting impact not just on the children, but on you as well.”
Volunteer with us – inspired by Branda? Contribute your time and talents to serve and impact our children at Club Rainbow!
Make a difference today - support Club Rainbow’s children and families
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and registered charity with the mission to support and empower children with chronic illnesses, many of whom are with special needs and disabilities, and their families to lead a dignified life and become active contributors to society.
Website: https://www.clubrainbow.org/
Contact number: 6377 1789
Email: contact@clubrainbow.org
Instagram/ Facebook/ LinkedIn/ TikTok/ YouTube: @clubrainbowsingapore
Ride & Ralk for Rainbows 2025 - Championing Dreams: Keven Chua’s Ride & Ralk for Rainbows Journey
Meet Keven Chua – a former child of Club Rainbow (Singapore), an advocate for resilience and inclusion, and a passionate supporter of Ride & Ralk for Rainbows.
Keven was born with Harlequin Ichthyosis, a rare genetic skin disorder, but he’s never let that define him. A proud graduate of Murdoch University with a double major in Business Law and International Business, Keven officially “graduated” from Club Rainbow in 2020 – a milestone that marked not the end, but a new beginning in his ongoing connection with the organisation.
Keven’s first encounter with Ride & Ralk for Rainbows – then known as Ride for Rainbows – was in 2015, when he had the honour of co-flagging off the event alongside then-Minister for Health, Mr Gan Kim Yong. The event brought together cycling enthusiasts, partners, and families to raise funds and awareness for children with chronic illnesses.
Keven returned the following year and continued to participate in the event in various capacities, including virtually during the pandemic.
“Each time I take part in Ride & Ralk for Rainbows, I’m not just riding for a cause. I’m reconnecting with a community that shaped me, and doing my part to give back.”
For Keven, Ride & Ralk for Rainbows goes beyond physical activity – it's a symbol of unity and shared purpose.
“My motivation comes from wanting to stand in the gap – to advocate for children living with chronic illnesses, to encourage them to dream big and never give up.”
Through his involvement, Keven hopes to inspire others to see the value of resilience, whether it’s expressed through music, art, or education. He believes that every child, regardless of their medical condition, deserves the opportunity to thrive.
The transition to a virtual event during the COVID-19 pandemic brought new challenges – from technical difficulties to adjusting to a more isolated experience. But for Keven, it was a lesson in adaptability.
“Technology was both a bridge and a barrier. But learning to stay patient and the flexibility to help us, helped us push through and keep the Ride & Ralk for Rainbows spirit alive.”
Some of Keven’s fondest memories include the unwavering support of former Club Rainbow patron, Mr Tan Chuan-Jin, who participated in Ride & Ralk for Rainbows events year after year – not just in an official capacity, but as someone who genuinely believed in the cause.
“His presence was a powerful reminder of how one person’s support can make a big difference.”
Thinking about joining Ride & Ralk for Rainbows for the first time? Keven has a heartfelt message:
“Start small – even if it’s just by observing or supporting a friend who’s taking part. When you experience the energy and unity firsthand, you’ll understand how impactful this event truly is. Your involvement, no matter how big or small, can shape the future of a child’s life.”
To Keven, the “ride” and the “walk” each represent powerful ideas. Ride for Rainbows is a journey of hope and perseverance, inspiring others to chase their own rainbows. Walk for Rainbows is a shared journey – side by side – with the children, families, volunteers, and supporters of Club Rainbow. Together, these paths lead to a brighter future for children with chronic illnesses – one filled with courage, dreams, and the chance to write their own Singapore story.
Join Keven and the rest of the Club Rainbow family at Ride & Ralk for Rainbows 2025 – where every step and pedal brings us closer to a brighter tomorrow. Register or donate now: https://www.rideforrainbows.org
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
Aaron’s Journey: Facing Life’s Twists with Strength and Spirit
Ms Jasmin Lau, Minister of State for the Ministry of Education and Ministry of Digital Development and Information, presenting the Education Award to Aaron Tan
“My dream? If I was being honest, my dream would just be for my family, friends and loved ones to be happy and live a blissful life,” shares Aaron Tan. “But if I had to choose something for myself… I’d say that I would want to be a palaeontologist, a scientist who studies the history of life on Earth through the examination of fossils.”
Currently pursuing a Higher Nitec in Communication Design at ITE College Central, Aaron’s path hasn’t been an easy one. Born with Pfeiffer Syndrome Type II — a rare condition characterised by a cloverleaf skull, midface underdevelopment, and other complex skeletal and neurological challenges — Aaron has had to navigate a world not quite designed for someone like him.
“I look a little different,” he says candidly. “So it was hard for me to communicate, leading to minor anxiety since I was afraid of being judged.”
His journey took an even more difficult turn in Primary 5, when he developed epilepsy. “I had to control my stress levels but with school, it’s a little hard.” On top of that, Aaron experienced two major leg fractures — once in Primary 6, and again in Secondary 2 — both of which affected his mobility and learning, especially during the extended recovery periods when lessons moved online.
But even through these setbacks, Aaron kept going.
His introduction to Club Rainbow (Singapore) came through KK Women’s and Children’s Hospital, and he joined Club Rainbow in 2018. Since then, Club Rainbow has become an anchor of support — providing tuition for subjects he found challenging and inviting him to express his creativity through art-related activities like painting and drawing, something Aaron deeply enjoys.
One of his proudest moments? Passing his PSLE — a milestone that came in a year filled with frequent epilepsy episodes and missed classes. Recently, Aaron was also honoured with the Special Commendation Award at Club Rainbow’s Education Awards Presentation Ceremony on 28 June. “I didn’t really have high hopes that I’ll pass my PSLE... And when I found out I was awarded the Special Commendation Award, I was actually confused and stunned... I didn’t expect to get it.”
Despite everything he’s gone through, Aaron’s spirit remains grounded — and quietly inspiring. When asked if he had any words for others facing similar challenges, he shares a piece of wisdom he often tells his friends:
“Life is tough and the path that we’re on is never a straight line, but that doesn’t mean you should give up on your dreams and life. When facing challenges, there are two things that you can do – either face it head on or stay where you are and do nothing. If you face challenges head on, there will be results and though the results may not be what you want, it’s a sign of improvement and growth but if you just do nothing, there’ll (not be any) progress, and life will just slowly fade away. Life is short and you’ll never know what may happen so sometimes, it’s better to just go for it and make use of the time you have.”
And Aaron is doing just that — one bold, creative step at a time.
Make a difference today - support Club Rainbow’s children like Aaron
Ride & Ralk for Rainbows 2025 - Walking for Love, and with Purpose: Geraldine’s Ride & Ralk for Rainbows Journey
Meet Geraldine Lee – a former child of Club Rainbow and now a beacon of strength, compassion, and resilience. Born with congenital heart disease, she grew up alongside her sister as part of the Club Rainbow family. From family outings to overseas adventures, Geraldine fondly remembers the care and community that Club Rainbow provided through every milestone of her childhood.
Last year, Geraldine participated in Ride & Ralk for Rainbows for the very first time. What sparked her journey was deeply personal: the passing of her beloved sister in late 2023 due to heart failure. “We were both Club Rainbow children,” she shares. “I wanted to honour her memory in a meaningful way—and giving back to the organisation that stood by us felt like the right step.”
That single step grew into something powerful. Despite facing physical limitations due to her health, Geraldine committed to walking, carefully pacing herself through short distances. One of her most touching moments? A 3.5km walk with her anxious little dog – stretching over 1.5 hours, filled with breaks, love, and determination. “It reminded me that every small step counts,” she says.
The experience exceeded all her expectations – friends and family rallied behind her, helping her hit her fundraising goal within just 24 hours. Her efforts even earned her the Top Fundraiser award. “It was incredibly heartwarming,” she reflects. “It showed me just how powerful a community can be.”
To Geraldine, Ride & Ralk for Rainbows isn’t just about fitness or fundraising – it’s about honouring memories, sharing hope, and walking in solidarity with children facing chronic illnesses. “Every step taken is a gesture of love,” she says. “Even if you can’t walk or cycle far, doing it with heart makes all the difference.”
Her message to newcomers? “Go for it! If you’re able-bodied and can walk or cycle, do it with the Club Rainbow children in mind. Every kilometre helps brighten a child’s life.”
Join Geraldine and the rest of the Club Rainbow family at Ride & Ralk for Rainbows 2025 – where every step and pedal brings us closer to a brighter tomorrow. Register or donate now: https://www.rideforrainbows.org
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
Ride & Ralk for Rainbows 2025 - Riding with Heart: Yi Wen’s Ride & Ralk for Rainbows Journey
Meet Chia Yi Wen – a former child of Club Rainbow (Singapore) who is a familiar face and resilient spirit in the Club Rainbow family. Born with Biliary Atresia, Yi Wen became joined Club Rainbow at just one year old – the same year Club Rainbow was founded. “I’ve essentially grown up with the organisation,” she shares. “Club Rainbow has been with me every step of the way.”
In 2015, Yi Wen joined her first Ride & Ralk for Rainbows event. That experience marked a turning point – not just as a personal achievement, but as a heartfelt way to give back. “After all Club Rainbow has done for me, I wanted to support the cause in any way I could. Ride & Ralk for Rainbows gave me that opportunity.”
Since then, she has participated six times – even navigating life milestones like childbirth and a global pandemic. Each ride brought unforgettable memories: “One year, it started raining just after flag-off. We all dashed for shelter at a nearby bus stop. While waiting for the rain to ease, everyone was chatting and looking out for each other. It reminded me why I keep coming back – the warmth, the togetherness, the shared purpose.”
Despite her health challenges and limited stamina, Yi Wen pushes through every ride. “There were many moments I wanted to give up. I’d see others finishing the route while I was still pedaling. I felt embarrassed. But then I reminded myself: I never gave up on life, despite the surgeries, the hospital stays. If I can overcome that, I can finish this ride too.”
To Yi Wen, Ride & Ralk for Rainbows is more than just an event – it’s a symbol of community, resilience, and hope. “It’s not about being the fastest. It’s about showing up, riding with heart, and supporting the children and families who need us.”
Her message to first-timers? “Don’t think, don’t hesitate – just join. The sense of purpose, the camaraderie, and the joy of doing something meaningful… it’s all worth it. We ride so others can see their rainbow.”
Join Yi Wen and the rest of the Club Rainbow family at Ride & Ralk for Rainbows 2025 – where every step and pedal brings us closer to a brighter tomorrow. Register or donate now: https://www.rideforrainbows.org
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and charity dedicated to supporting and empowering children with chronic illnesses – many of whom are with special needs and disabilities – and their families. Through a holistic suite of compassionate, relevant services, we journey with them towards living with dignity, and becoming active contributors to the society.
Website: https://www.clubrainbow.org
Contact number: 6377 1789
Email: contact@clubrainbow.org
Facebook / Instagram / TikTok / LinkedIn / YouTube: @clubrainbowsingapore
Xander’s Journey: Overcoming Challenges with Resilience and Support
Xander Lee
In celebration of Youth Day on 6 July, we shine a spotlight on 17-year-old Xander, a spirited and determined individual who has faced life’s challenges with courage. Diagnosed with Attention Deficit Hyperactivity Disorder (ADHD) and Oppositional Defiant Disorder (ODD) in primary school, Xander has had to navigate difficulties that affected his ability to concentrate and manage his emotions. His journey, however, is a testament to perseverance, growth, and the power of support.
Xander’s condition meant that he often struggled with impulsivity and anger management, which made school life challenging. Easily distracted, focusing on lessons required extra effort, and his academic performance was impacted. To manage his condition, he took medication to help with concentration and impulse control, allowing him to better engage in his studies.
His family discovered Club Rainbow (Singapore) through a friend, and in 2018, Xander joined the organisation. Since then, Club Rainbow has played a pivotal role in supporting both Xander and his family, offering educational support programmes to aid in his academic journey and providing opportunities through the Talent Development Fund to encourage his personal growth and interests.
Despite the hurdles, Xander’s perseverance shone through, particularly in his co-curricular activities. One of his proudest achievements was being appointed as the Troop Leader of his school’s Scouts CCA. This leadership role allowed him to oversee the welfare and training of his peers, a remarkable milestone considering the challenges he faced in his early secondary years.
Xander's dedication to learning has also been recognised by Club Rainbow. He is a proud recipient of the Education Awards 2025 under the "Spirit of Learning" category – a reflection of his resilience and positive attitude towards his educational journey. This year, he has also stepped into the spotlight as a co-emcee for the Education Awards 2025 Ceremony, where he helped honour the achievements of his peers.
Looking ahead, Xander’s family hopes that he will continue to pursue his passions and always strive to do his best. His journey is an inspiration to others facing similar challenges, and his message to them is simple yet powerful: “Be better than you were yesterday, every day.”
Through resilience, determination, and the unwavering support of those around him, Xander continues to pave his own path forward, proving that challenges can be overcome with the right mindset and support system.
Make a difference today - support Club Rainbow’s children like Xander
#RainbowofDreams Beating to the Rhythm of Resilience: Adli Irfan’s Journey in Arts
Adli on the drums
Photo Credits: Thunder Rock School
Adli
Meet the young musician set to perform at Dreamseeds Arts Fest Performing Arts Concert 2025
At just 17 years old, Adli Irfan is already a familiar face at Dreamseeds Arts Fest (DSAF). A passionate drummer and music enthusiast, Adli will be performing with the Thunder Rock band and cajon ensemble for this year’s DSAF Performing Arts Concert, which will mark his fifth time performing for DSAF since first joining in 2017.
Adli lives with Crohn’s disease, a chronic illness he has managed since he was five. “The condition affects my ability to absorb nutrients when I eat, so it’s important that I take my medication every day,” he explains. Despite the daily challenges, his condition has never stopped him from pursuing his love for music.
That love started young and has only grown stronger. “I listen to music almost 24/7,” he shares, “It is something that I cannot live without every day. No matter what I'm feeling, if I'm happy, distraught, angry, or just bored, music will always be my go-to.”
Adli joined Club Rainbow (Singapore) around 2014, and he credits the organisation for playing a big part in supporting his musical journey. Through Club Rainbow’s Talent Development Fund, Adli has been able to attend drum lessons, purchase musical equipment to further hone his craft, and develop his other musical interests in singing, ukulele, and cajon through lessons provided.
When asked why he continues to perform for DSAF year after year, Adli shares that performing for DSAF has really helped him to improve his skills on stage and taught him so much about music as a whole. “I always look forward to Dreamseeds. The most memorable part will always be the fun times shared together with my friends when we are rehearsing, and during the show itself. We would always enjoy ourselves together, making mistakes, tweaking parts of the songs, innovating and improvising each piece that we practice.”
To Adli, DSAF is more than just a performance platform. “It’s an expression of creativity. It’s an avenue for the children of Club Rainbow to express their true feelings through a variety of art forms, not just music, but also visual arts.”
Now a student in Diploma in Sonic Arts at a local polytechnic, Adli admits that juggling studies and rehearsals can be challenging. “It makes it a little difficult to make time to get together with my band and rehearse.” Still, Adli looks forward to his upcoming performance, and is filled with anticipation. “I'm really excited. I honestly can’t wait for the concert. Especially since there wasn’t Dreamseeds last year, I would want to make this year’s a really meaningful one.”
And for others like him who are navigating life with chronic conditions while dreaming of pursuing the arts, Adli has this message:
“Follow your dreams and seize every opportunity—especially if you love music. Club Rainbow has given me countless opportunities to learn and grow through my musical journey and has helped me tremendously in other areas in life, such as my current polytechnic course, Diploma in Sonic Arts. Not everyone has the opportunity to learn music for free, so I am thankful to have had all the opportunities to do so in Club Rainbow.”
About Dreamseeds Arts Fest (DSAF)
First launched in 2016, DSAF is dedicated to fostering inclusivity in the arts. The festival provides the children of Club Rainbow (Singapore) a platform to explore and realise their creative potential while connecting with the broader community through artistic expression. These young artists receive resources and opportunities to collaborate with local creative practitioners, helping to nurture their skills and broaden their horizons. This year marks the festival's eighth installment.
💛 Support Our Young Artists!
🎨 Support young artists like Adli via #RainbowofDreams Fundraising Campaign. Every donation helps nurture young talents and reminds our children that their passion in the arts and stories matter.
Together, let’s champion creativity, courage, and compassion — one artwork at a time.
Celebrating Father’s Day (15 June 2025): Daren’s Fatherhood Journey with Ethan
Daren with Ethan
Caelan (Left), Daren (Centre), Ethan (Right)
This Father’s Day, we celebrate the quiet strength and unwavering love of fathers like Daren Ong – a devoted dad, resilient fighter, and inspiring role model.
At 48, Daren’s life took an unexpected turn when a stroke in December 2024 left the left side of his body paralysed. Once a business owner juggling work and part-time studies, he is now focused on rehabilitation – but above all, he remains a pillar of support for his family.
Daren is a proud father to two boys: 15-year-old Ethan, who was diagnosed with moderate Autism Spectrum Disorder (ASD) at age 4, and 13-year-old Caelan. For Daren, fatherhood means being present, leading by example, and showing his sons how to face life’s trials with courage and heart.
“I remind myself that the most purposeful thing I can do is to take care of my family,” he shares. “My recent health issues have shown me that time is precious – so I’m doing all I can, for as long as I can.”
Navigating Ethan’s condition comes with its own set of challenges, especially as Ethan faces developmental delays in speech, motor skills, and everyday tasks. But Daren and his family have found invaluable support in Club Rainbow (Singapore). From therapy sessions made accessible through subsidies, to inclusive workshops and events that give Ethan a safe space to explore and grow, Club Rainbow has been a trusted partner in their journey.
“The staff are always kind, compassionate, and willing to help,” Daren says. “These opportunities mean the world to us.”
Balancing caregiving, rehabilitation, and self-care isn’t easy, but Daren makes it a point to find moments of rest and ask for help when needed. “Even a few minutes to close my eyes and breathe helps,” he reflects. He’s thankful for his strong family network – including his parents and sister – who step in when things get overwhelming.
Though Father’s Day wasn’t a big occasion in his childhood, it’s a role he now embraces fully. “I’ve come to realise the importance of celebrating fathers and the bonds we share. Our children look to us – not just for answers, but for how we handle life.”
One of Daren’s most treasured memories with Ethan is simple but full of warmth: carrying his giggling son on his shoulders, watching his face light up with joy, and feeling the soft weight of a sleepy head resting on his own.
To other fathers and father figures, Daren offers this reminder:
“Don’t underestimate the effect of your presence in your child’s life. You teach them just as much by what you do – and also by what you don’t do.”
Happy Father’s Day to all the incredible dads who lead with love, strength, and heart. Today, we celebrate fathers who show up through every challenge and joy. Your quiet strength, patience, and love leave a lasting impact. Thank you for being the steady pillars your children can always count on.
Make a difference today - support Club Rainbow’s children and families like Daren and Ethan
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and registered charity with the mission to support and empower children with chronic illnesses, many of whom are with special needs and disabilities, and their families to lead a dignified life and become active contributors to society.
Website: https://www.clubrainbow.org/
Contact number: 6377 1789
Email: contact@clubrainbow.org
Instagram/ Facebook/ LinkedIn/ TikTok/ YouTube: @clubrainbowsingapore
International Day of Play (11 June 2025): Marina's Journey in Play Therapy
At Club Rainbow (Singapore), play is more than just fun – it is a powerful tool for growth, expression, and healing. This International Day of Play, we spotlight Marina Lim, a dedicated Play Therapist whose passion for working with children has brought joy and transformation to many young lives.
Marina is a mother of two, with one child on the spectrum. As an educator for over 30 years and a Play Therapist for more than a decade, she has dedicated her life to helping children and families through creative and playful interventions. Her company, Creative Play Therapy / Creative Play Lab, embodies the kampong spirit – where the community comes together to support a child’s growth and well-being.
Marina
Marina’s journey as a Play Therapist was inspired by her own experiences as a parent of a child with special needs. She sought a non-intrusive, engaging, and fun way to support children in expressing themselves, leading her to play therapy – a method that allows children to communicate their needs and emotions freely, even without words.
At Club Rainbow, Marina works closely with children who may struggle to verbalise their feelings. Through play therapy, she provides a safe and empowering space for them to explore their emotions, build confidence, and develop self-awareness. Parents have seen firsthand how their children have grown, gaining a voice and unlocking their potential through these sessions.
One memorable success story involves a teenager, affectionately referred to as Strawberry Shortcake, who faces developmental challenges. Through play therapy, she has become more emotionally regulated, self-aware, and expressive. Her father shared how the sessions have helped her communicate her needs more effectively, allowing her to navigate the world with greater confidence.
Play therapy is a gentle and patient process that takes time to yield results. Some children require longer-term intervention, which can test the patience of caregivers and children alike. However, Marina believes in the power of persistence – over time, every small step forward is a victory.
Play is fundamental to a child’s development, nurturing cognitive, physical, social, and emotional growth. It fosters problem-solving skills, creativity, language development, and resilience. Marina encourages parents to integrate play into their daily interactions in ways that align with their family’s interests. Whether it's outdoor sports, creative art sessions, or building projects, the key is to make play an enjoyable and natural part of life. These play sessions also help to strengthen the bond between parents and children, creating meaningful learning experiences.
The first-ever International Day of Play, established by the United Nations General Assembly, is a monumental step in recognising the right of every child to play. Supported by global organisations like UNICEF, UNESCO, and the LEGO Foundation, this initiative highlights the importance of play-based learning and its role in shaping resilient, problem-solving future generations.
“The power of play is an essential ingredient for all, regardless of age, to be joyful and connected.”
This International Day of Play, let’s celebrate the magic of play and the difference it makes in children’s lives. Through play, we create a world where every child feels heard, valued, and empowered to thrive.
Make a difference today - support Club Rainbow’s children and families by volunteering with us!
About Club Rainbow (Singapore)
Established in 1992, Club Rainbow (Singapore) is a non-profit organisation and registered charity with the mission to support and empower children with chronic illnesses, many of whom are with special needs and disabilities, and their families to lead a dignified life and become active contributors to society.
Website: https://www.clubrainbow.org/
Contact number: 6377 1789
Email: contact@clubrainbow.org
Instagram/ Facebook/ LinkedIn/ TikTok/ YouTube: @clubrainbowsingapore
#RainbowofDreams Pursuing Passion Through Adversity: Sage Tan’s Journey in Art
Sage
Meet Sage Tan, a vibrant and inspiring 19-year-old artist with a passion for creativity and a story of resilience. A recent graduate from ITE College Central, Sage is now looking forward to beginning a new chapter at NAFA (Nanyang Academy of Fine Arts) this August. Despite facing complex health challenges, Sage continues to pursue his dreams with remarkable determination and heart.
A Unique Journey
Sage lives with a rare metabolic condition known as Maple Syrup Urine Disease (MSUD) and has undergone two liver transplants. In addition, he manages food and drug allergies, along with an eye condition called bilateral optic neuropathy, which affects his vision. These challenges, however, have not defined him — instead, they’ve fuelled his strength and resilience.
Navigating school wasn’t always easy. Due to a language disorder, Sage sometimes found it difficult to follow lessons. "Some of the challenges I faced in school were understanding what the teacher was teaching," he shared. "To overcome that, I had to ask the teacher for confirmation or questions to understand." This determination to learn has carried him through, both academically and personally.
Discovering a Love for Art and Sketching Singapore
Sage’s artistic journey began at home. “My mum introduced and inspired me to do art,” he says. “She taught me acrylic painting and drawing too.” His creative skills blossomed further when he attended art workshops through Club Rainbow (Singapore). There, Sage not only refined his techniques but also found a community that nurtured his passion.
“I joined Club Rainbow in 2007, when I was two years old,” Sage recalls. “Their art workshops and mentor have supported me and my passion in Arts.”
In recent years, Sage has taken his art beyond the classroom, exploring the beauty of local architecture through sketching. As part of a sketching group, he visits different parts of Singapore every weekend, capturing buildings and landmarks that catch his eye. His love for Singapore’s rich architectural heritage has not only helped develop his personal style but has also gone on to inspire others. In fact, Sage’s distinctive architectural artworks were chosen to be part of Club Rainbow’s SG60 merchandise collection, launched in celebration of Singapore’s 60th birthday. His pieces now proudly represent the spirit and creativity of local youth — a meaningful way to honour both his talent and the nation’s milestone.
Looking Ahead
Sage’s dreams are rooted in creativity and purpose. “I hope to become an art teacher or an artist,” he shares. To others who may be navigating similar health challenges while chasing their artistic dreams, Sage has a message:
“Never give up on everything. Keep trying!! Improve on it.”
His journey is a testament to the power of perseverance, creativity, and the support of a caring community. Through every sketch and brushstroke, Sage Tan continues to inspire — reminding us all that no dream is too distant, no obstacle too great.
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Celebrate SG60 with our merchandise collection!
🛍️ Shop our merchandise and be inspired by the vibrant energy of Singapore, with unique architectural artworks hand-drawn by our young artists, Lucas and Sage.
🎨 Support young artists like Sage via #RainbowofDreams Fundraising Campaign. Every donation helps nurture young talents and reminds our young artists that their art and stories matter.
Together, let’s champion creativity, courage, and compassion — one artwork at a time.
From Camper to Changemaker: Eileen’s Journey with Camp Rainbow
Eileen
Meet Eileen – a dedicated youth working in the school sector with a heart for inclusion and service. Outside of her professional role, Eileen spends her free time volunteering with the special needs community, working alongside like-minded individuals to create an inclusive and supportive environment.
Her passion is deeply personal. Born premature and diagnosed with cerebral palsy, Eileen has never let her condition define her limits. She shares, "My aspiration is to build a career in the special needs education or social service sector, where I can make a meaningful impact by offering a fresh perspective on how society views individuals with special needs."
Journeying with Club Rainbow
Eileen’s connection with Club Rainbow (Singapore) began during her childhood, at a time when she was attending regular medical appointments. Medical social workers recognised her need for both social support and educational assistance, eventually introducing her to Club Rainbow – a turning point in her journey.
Since joining in 2012, Eileen has benefitted from the organisation’s holistic support iin numerous ways, such as tuition tailored to her learning pace to support her education journey, and programmes that enriched her social life. “Through significant annual events like Camp Rainbow, I was given the opportunity to interact with people beyond my usual circle, helping me expand my social connections and experiences.”
Camp Rainbow: More Than Just a Camp
Camp Rainbow, the biggest and only medically-supervised 3-day 2-night (3D2N) camp organised by Club Rainbow (Singapore), is designed specifically for children with chronic illnesses. But it offers far more than a simple getaway. It's a place of empowerment, inclusion, and community – something Eileen has experienced firsthand.
“As a camper, I enjoyed every year I participated in Camp Rainbow,” she says. “It felt like a reunion each time, as I had the chance to reconnect with friends while creating new memories together.”
Her positive experience eventually inspired her to return in a new role – as a volunteer befriender and a member of Camp Rainbow’s organising committee.
“Camp Rainbow has made a profound impact on my life through the friends and connections I've made over the years,” she explains. “Returning as a volunteer feels like a calling, as I want to give back to the community that has supported me by helping create meaningful experiences. It’s exactly what I hope other children can experience as well.”
Volunteering with Camp Rainbow has been both an honour and a joy for Eileen. Seeing familiar faces return year after year, watching them grow as individuals and continue to be part of the experience has given Eileen a sense of fulfillment.
“I’m looking forward to seeing both new and familiar faces, as well as the exciting activities we have planned for them,” she says. “It’s always rewarding to create an engaging and memorable experience for our campers, while also providing caregivers with a much-needed chance to rest and recharge.”
A Message to Fellow Youths
To returning campers considering to volunteer for Club Rainbow, Eileen has a heartfelt message:
“For returning youths, I encourage you to pass down the amazing experiences and memories you’ve gained to others. Share the light and passion that you’ve received, and inspire them to give back in their own way.
For youths who are considering getting involved, I want to remind you that Persons with Special Needs are not ‘scary.’ With patience, understanding, and guidance from others, you’ll find that you can make a meaningful impact and build strong, supportive connections.”
Eileen’s journey is a shining example of how one person’s story can ripple outward, inspiring hope, courage, and community. Camp Rainbow isn’t just a camp – it’s a celebration of resilience, friendship, and the belief that every child, regardless of their challenges, deserves joy and belonging.
About Camp Rainbow
Organised by Club Rainbow (Singapore), Camp Rainbow is the biggest and only medically-supervised 3D2N camp for children with chronic illnesses.
Join us in making a difference in the lives of children with chronic illnesses by volunteering for Camp Rainbow or for our other events and activities. Together, we can continue to create magical experiences for those who need it most!